Hello everyone. Thankyou for letting me join. Im a 33 year old female in UK.
My doctor tells me she doesnt know what is wrong with me. And im seeing a neurologist next week after a long 4 month wait.
A few years ago myself and everyone noticed my bad memory. Its become a bit of a funny joke between myself and family members. It has got to bad after the last few years. And i have even lost friends over forgotten appointments. I have been scared i have dimenta. But my doctor said no.
I also had numbness in my feet and hands back then and developt shaking in my eyeballs. But i just got on with life.
Last year (a year or so forward) im not great with time. I started to have difficulty talking.
I started to stutter, slur occasionally, say the words, loose track of convo, forget words. I was really embarresed when it started and no idea why. I still get embarresed now as it makes me sound stupid.
I have suffered with tiredness extremely. To the point even getting dressed is too much sometimes. I cant hold a conversation or hear what people are saying. Went to the doctors last year, had a blood test and all fine. Didnt mention the other stuff as i suppose i was ignoring it.
This January it all kicked off quite badly. There was some type of turning point here. I couldnt ignore this anymore.
I then started to get a tingling in my face which has now turned to attacks of pain on the right side. The doctor this year has said it trigeminal neuralgia. Thats the only diagnosis for anything i have.
I now have nerve pain all in my body, arms, legs, hands, feet. This has been difficult to live with. I also now have weird feelings like water tricking down my legs, wet feelings. Numb patches, feeling like something is stuck under my foot, prickling. Burning sensations. Goosebumps for no reason in one area of my body or another.
I also have muscle twitching, and spasms all over. I have spasms in my chest and i thought i was having a heart attack. My muscles go so tight and i struggle to catch my breath, walk, talk. I tried to hide this from people which is hard. This leave my ribs with a bruised feeling for days.
So my doc did loads of blood tests and a hearing test. And all fine. A bit low on vit D so been taking that for around 6 months. But not improved my troubles.
My doc has given me Amytriptaline which i couldnt take and im now taking Gabapentin which has helped quite a bit. But not completely and still having a lot of muscle spasms and some pain.
I have lost sensation also in my lady area so this has effected private time for me. If you understand. I had a test for menopause but again fine. Which i was really suprised about.
So im relying on the neuro now to help me : ( im desperate for answers. I feel my future may not be as i planned. I looked up my symptoms and of course MS came up and now im here.
Thankyou for taking the time to read. Any reassurance or feedback would be greatly appreciated.
Wish me luck for next week : )
My doctor tells me she doesnt know what is wrong with me. And im seeing a neurologist next week after a long 4 month wait.
A few years ago myself and everyone noticed my bad memory. Its become a bit of a funny joke between myself and family members. It has got to bad after the last few years. And i have even lost friends over forgotten appointments. I have been scared i have dimenta. But my doctor said no.
I also had numbness in my feet and hands back then and developt shaking in my eyeballs. But i just got on with life.
Last year (a year or so forward) im not great with time. I started to have difficulty talking.
I started to stutter, slur occasionally, say the words, loose track of convo, forget words. I was really embarresed when it started and no idea why. I still get embarresed now as it makes me sound stupid.
I have suffered with tiredness extremely. To the point even getting dressed is too much sometimes. I cant hold a conversation or hear what people are saying. Went to the doctors last year, had a blood test and all fine. Didnt mention the other stuff as i suppose i was ignoring it.
This January it all kicked off quite badly. There was some type of turning point here. I couldnt ignore this anymore.
I then started to get a tingling in my face which has now turned to attacks of pain on the right side. The doctor this year has said it trigeminal neuralgia. Thats the only diagnosis for anything i have.
I now have nerve pain all in my body, arms, legs, hands, feet. This has been difficult to live with. I also now have weird feelings like water tricking down my legs, wet feelings. Numb patches, feeling like something is stuck under my foot, prickling. Burning sensations. Goosebumps for no reason in one area of my body or another.
I also have muscle twitching, and spasms all over. I have spasms in my chest and i thought i was having a heart attack. My muscles go so tight and i struggle to catch my breath, walk, talk. I tried to hide this from people which is hard. This leave my ribs with a bruised feeling for days.
So my doc did loads of blood tests and a hearing test. And all fine. A bit low on vit D so been taking that for around 6 months. But not improved my troubles.
My doc has given me Amytriptaline which i couldnt take and im now taking Gabapentin which has helped quite a bit. But not completely and still having a lot of muscle spasms and some pain.
I have lost sensation also in my lady area so this has effected private time for me. If you understand. I had a test for menopause but again fine. Which i was really suprised about.
So im relying on the neuro now to help me : ( im desperate for answers. I feel my future may not be as i planned. I looked up my symptoms and of course MS came up and now im here.
Thankyou for taking the time to read. Any reassurance or feedback would be greatly appreciated.
Wish me luck for next week : )
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