I have been going round in circles for about 5 years. I started out with weird pain and numbness in my head and trip to the ER. I am very claustrophobic so they did the open MRI.
MY PCP said that first MRI suggested MS and sent me to a neurologist who said the lesions were not typical of MS.
I have had a battery of testing since:
one said the EMG/nerve conduction study was postive for neuropathy in my legs (several years after the head ER visit);
another thought that docs' technique for EMG was off because his office exam (with those diaper pins) did not show neuropathy;
another brought up MS again and sent me to his colleague who said it was not MS;
one said it was merely a Vitamin D deficiency (gotten the level over 30 but symptoms are progressing).
Now I know why they call it "practicing" medicine!
Due to a lay-off, we have changed insurance companies and therefore had to change neurologists to be "in-network".
The new neurologist I saw last week said he thought the probability of MS was low due to the pattern of lesions but thought it was worth doing an MRI on a 3 Tessla machine, saying the Open MRI machine resolution was pretty lousy and a waste of money. Wish someone had told me that along the way before spending all that money (6 Open MRIs on brain and spine).
Our insurance deductible has gone up to $5,000 so not sure if this will be more wasted money?
Current symptoms are burning/tingling legs, painful stiffness in legs, dropping things numerous times per day,several falls the past few years resulting in rotator cuff injury/surgery.
The progression and weird symptoms have been a steady downhill over the past 5 years. Makes me worried about what is ahead since I have no clue what is wrong.
Has anyone had new information show up on a 3 Tessla machine after having Open MRIs?
MY PCP said that first MRI suggested MS and sent me to a neurologist who said the lesions were not typical of MS.
I have had a battery of testing since:
one said the EMG/nerve conduction study was postive for neuropathy in my legs (several years after the head ER visit);
another thought that docs' technique for EMG was off because his office exam (with those diaper pins) did not show neuropathy;
another brought up MS again and sent me to his colleague who said it was not MS;
one said it was merely a Vitamin D deficiency (gotten the level over 30 but symptoms are progressing).
Now I know why they call it "practicing" medicine!
Due to a lay-off, we have changed insurance companies and therefore had to change neurologists to be "in-network".
The new neurologist I saw last week said he thought the probability of MS was low due to the pattern of lesions but thought it was worth doing an MRI on a 3 Tessla machine, saying the Open MRI machine resolution was pretty lousy and a waste of money. Wish someone had told me that along the way before spending all that money (6 Open MRIs on brain and spine).
Our insurance deductible has gone up to $5,000 so not sure if this will be more wasted money?
Current symptoms are burning/tingling legs, painful stiffness in legs, dropping things numerous times per day,several falls the past few years resulting in rotator cuff injury/surgery.
The progression and weird symptoms have been a steady downhill over the past 5 years. Makes me worried about what is ahead since I have no clue what is wrong.
Has anyone had new information show up on a 3 Tessla machine after having Open MRIs?
Tira
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