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Pretty sure it's MS

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    #1

    Pretty sure it's MS

    Hi all!

    my name is Abbie, I'm 25, a kindergarten teacher, and I have recently gotten my MRI results after having vision problems (nystagmus) for about a week. They've cleared up since and I only continue to have headaches all day everyday (I've always had bladder problems and fatigue since I can remember, nothing new there.)

    anyway, the MRI was suggestive of MS and bilateral optic neuritis (multiple areas of T2 hyper intensity with bilateral cerebral hemisphere white matter and high T2 signal within the bilateral optic nerves suggestive of bilateral optic neuritis)

    whatever that all means, I have a handful of appointments this week to confirm the diagnosis.

    Just wanted ted to introduce myself and share. Hoping for the best! God bless! ❤️
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    #2
    Welcome to our "club", Abbie, even though none of us really want to need to be here. I expect you'll find a lot of support here.
    ~ Faith
    MSWorld Volunteer -- Moderator since JUN2012
    (now a Mimibug)

    Symptoms began in JAN02
    - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
    - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08    .
    - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
    - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

    Comment

      #3
      Originally posted by Mamabug View Post
      Welcome to our "club", Abbie, even though none of us really want to need to be here. I expect you'll find a lot of support here.
      thanks! Feeling very dizzy and tired today. Always have those tingles too. Trying to figure out how to get back on track to the way my life was 2 weeks ago. Hopefully this week when I see some specialists I will get some more answers. ❤️

      Comment

        #4
        Oh, Abbie. I hope you can get back on track, to the way your life was two weeks ago. My life, however, has not ever been the same since my first flare in 2002.

        I usually get back on track, now, following an MS flare, to what my "norm" was prior to the flare. But, never back to pre-MS. And, sometimes, following a new flare, I have new residual symptoms, and don't even get back to what used to be my norm.

        Unfortunately, MS is not curable. And, it is a progressive disease.

        Hope I'm not bursting any bubbles for you. And, I wish I had better news. However, I have found that I am stronger than I knew I was. I've learned to cope with my life as it is now, and, as it continues to change. I've learned to cope with losses. And, I've learned to find, and even appreciate the blessings that MS has given me in the midst of my losses.
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08        .
        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

        Comment

          #5
          Welcome, Abbie! I'm new here, too. I'm sorry to hear of your symptoms but hopefully the doctors will get you answers soon. <3

          Comment

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