Hello - I am new here. I need help and encouragement coping with the uncertainty and the road to finding out what is wrong.
I went to neuro after many months of pain in my hands and feet. Overall weakness and fatigue. It has progressed to the point that I need a cart to walk with when I go to a store, and each day I have about 3 hours of low energy before I just bottom out to no energy at all. I have numbness at times in my feet and hands along with blurry vision and neck and back pain.
My primary doc put me on neurontin and nortryptiline to help with the pain, it helps some, but still have pain and the meds cause an increase in fatigue. I have my husband drive me to work on the days I am too dizzy to drive.
The neuro doc ordered an MRI brain and c spine. She noted 3-4 beat clonus and bilateral hoffman's sign, and parasthesias. I saw my optometrist a couple of months prior to this, who increased my prescription and put me on ristasis for dry eyes.
The nurse called and said the MRI was "pretty much unremarkable" and that the neuro would go over it in more detail at my next appointment which is in one month. I am just stunned and don't know if it is possible to have MS w/o lesions? Not sure what else there is to go over, I will probably need to get a copy of that MRI reading.
I am not sure if they MRI was done on a 1.5T or a 3T MRI machine, I know there is some controversy over that. I have had a lot of labs, all came back normal.
What next? I am living with this and it has caused me to miss work, most of the time I have been going in feeling sick, but it is getting harder and harder to suck it up and go on like I am not weak, fatigued, and having pain.
Any thoughts from those of you who have gone through this are appreciated. Thought about going to Mayo, would they work through this any faster??
I went to neuro after many months of pain in my hands and feet. Overall weakness and fatigue. It has progressed to the point that I need a cart to walk with when I go to a store, and each day I have about 3 hours of low energy before I just bottom out to no energy at all. I have numbness at times in my feet and hands along with blurry vision and neck and back pain.
My primary doc put me on neurontin and nortryptiline to help with the pain, it helps some, but still have pain and the meds cause an increase in fatigue. I have my husband drive me to work on the days I am too dizzy to drive.
The neuro doc ordered an MRI brain and c spine. She noted 3-4 beat clonus and bilateral hoffman's sign, and parasthesias. I saw my optometrist a couple of months prior to this, who increased my prescription and put me on ristasis for dry eyes.
The nurse called and said the MRI was "pretty much unremarkable" and that the neuro would go over it in more detail at my next appointment which is in one month. I am just stunned and don't know if it is possible to have MS w/o lesions? Not sure what else there is to go over, I will probably need to get a copy of that MRI reading.
I am not sure if they MRI was done on a 1.5T or a 3T MRI machine, I know there is some controversy over that. I have had a lot of labs, all came back normal.
What next? I am living with this and it has caused me to miss work, most of the time I have been going in feeling sick, but it is getting harder and harder to suck it up and go on like I am not weak, fatigued, and having pain.
Any thoughts from those of you who have gone through this are appreciated. Thought about going to Mayo, would they work through this any faster??
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