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    Paranoid about it being MS?

    I think I'm being paranoid. I hope so. I just kind of wanted some opinions I guess. I obviously know there are lots of tests needed to diagnose MS, and that no one can on a forum or anything like that. Anyways, here's a brief medical history to catch up what is going on now.

    I have severe allergies, I have my whole life. I've always been an active bathroom user, but its gotten worse in the last few years. I wake up about every hour and a half to two hours at night to go. Often times I can't hold it more than 45 minutes during the day. It takes forever for the flow to start, and I have to make myself go 2-3 times to feel empty. I've had digestive pain since I was young. I went to doctor after doctor complaining. In this time I developed anxiety disorder and panic disorder. I've had major depression since I was 12. I finally got a doctor to do an endoscopy/colonoscopy to essentially shut me up because she thought I was a paranoid hypochondriac. 18 stomach polyps, 7 colon polyps, GERD, a hiatal hernia, chronic gastritis and IBS made her change her tune pretty quick.

    Since I am no stranger to ailments, and am frequently on pretty heavy antidepressants, I tend to chalk anything odd going on to just how my strange body reacts to things. I tend to get many many side effects from any medication. About 4 weeks ago though, I woke up suddenly cross-eyed. I've never had eye problems except some bad nearsightedness. The psychiatrist was adamant that it was from propranolol and to wait it out and it would go away. 2 weeks later and an optometrist later it still wasn't fixed. I got in to see a neuro-opthamologist and she was puzzled. I am awaiting 2 MRIs.

    In the week since I've seen her things have gone downhill. I am under a lot of stress, starting college again after 5 years of a break to try and help my anxiety and other issues. I've been trembly, but I've had antidepressants cause that in the past, so I don't know about that.

    My hand and wrists have been hurting, but I chalked that up to not being used to taking notes. 3 days ago however, I was in class and my arm was twitching uncontrollably. Embarassing, but not obvious. Then a deep aching pain started all the way up my right arm. Shortly followed by the left arm. My toes started to feel numb, so I shuffled around in case they fell asleep. It went away but was replaced by a severe pain in my big toe radiating down my foot. It was like 1000 needles and fire. I had a hard time trying to not look in severe pain. It went away after a few minutes, but when I went to pick up my notebook and thin paperback text book, my arm was so weak I could barely do it. My whole right side stayed weak all night.

    Since then, I have almost constant deep aching pain in my arms, hands, feet and lower legs. The occasional sharp toe pain or feeling of numbness comes and goes. It's hard to even sleep, I feel like my whole body hurts. I'm used to feeling fatigued, but this is just painfully fatigued. The only thing that eases the pain is my klonopin for my anxiety. I have to ration it between anxiety and pain, and its terrible trying to rank one more important than the other and suffer either way.

    I'm sorry if its a bit of a rant. I have never dealt with body pain or sensations like this, and this is all new and scary. : (

    #2
    I am sorry that this is happening to you. Your predicament seems to be very tricky and you probably need to get to a neurologist. The first stop for you should be to your primary care doctor. I hope that your doctor will do some tests and send you on to a specialist. Good luck

    Comment


      #3
      I'm so sorry to hear about all of the medical problems you've experienced so early in life. You are your own best advocate and you are a warrior. Great work.

      Having medical professionals stamp 'hypochondria' in medical records seems to never escape the bias associated with depression, anxiety, etc., despite the validation via diagnosis of so many of your medical problems. Seems you're are on the right track to rule out or rule in a MS dx.

      Diplopia/cross eyed, is associated with MS due to eye muscle weakness which could be weakness associated with MS or something other than MS.

      ON, aka Optic Neuritis is of greater diagnostic value because ON is indication of inflammation of the ON, the Optic Nerve.

      MS is an inflammatory disease of the CNS/Central Nervous System. The CNS consist of the Brain, the Spinal Cord, and the Optic Nerve.

      I hope this helps, or at least is of some confort to you.

      Best of luck and keep us informed of the results of your MRI.

      Comment


        #4
        You guys definitely have given me some comfort. I very greatly appreciate it! Most of the people around me try their best to understand how it feels to have your body seem to turn on you in a sense, but I'm sure you all understand that try as they might, healthy people can't fully appreciate your circumstances. It just feels good to talk about it to be honest. Thank you so much for your support! Regardless of what happens it means the world to me to have you guys give me some information. I will update when I have had the MRIs on the 12th of this month. Much love and healing thoughts to you all!!!!

        Comment


          #5
          Looking at your "rant" (which to me looks like your honest recounting of your scarey symptoms), I see at least three physician-documented "hard evidence" medical abnormalities that you can't "just be imagining":

          1. Your bladder isn't working right, as it is not normal to get up every 1 - 2 hours at night, or to have such difficulty emptying.

          2. Your eye muscles aren't working correctly ("crossed eyes") AND the involved specialist can't explain why.

          3. You have stomach and colon polyps. Colon polyps might be associated with Inflammatory Bowel Disease (like ulcerative colitis, an auto-immune disease) which may need a specific treatment. Your GI doc and PCP will help you with this if needed, as well as treating the GERD, gastritis, etc.

          Maybe you are anxious, paranoid, achey, weak or any of a bunch of other things in addition, causing you to be labeled a "hypochondriac." But your primary care practitioner should be evaluating you to rule out the "MS mimics" (lots of blood tests) while referring you to the appropriate specialists to get specific diagnoses and treatments if they are there.

          It sounds like that is happening with the GI doc who did the endoscopy, and the neuro-ophthalmologist who has ordered MRI's. Maybe you need a urologist to check the bladder, maybe a more general neurologist, maybe some others - let your PCP help you in all this by being "the quarterback."

          Congratulations on starting back to college, and best of luck working through all these stressful circumstances! It's tough but it sounds to me like you are handling this pretty well. Keep in touch, as we are here for your support.

          Comment


            #6
            According to some 'new' research, bladder urgency and frequency can be associated with anxiety, and can be successfully treated with anti-anxiety meds.

            It may be of particular significance in the absence of UTIs or in the absence of any other abnormality, for instance kidney stones that complicate bladder function.

            I lived with U/F, UTIs, visible blood in urine for 5yrs of active sx's, so I have some doubt about the bladder Urgency, Frequency association with anxiety.

            I had pretty high anxiety during the 5yr period of un-dx MS sx's, and it took an additional 10yrs before MS was dx. So I'm a bit jaded when the latest and greatest, easy fix 'thing' in medicine comes along.

            Of course if UTIs and other bladder dx have been ruled out, I guess the anxiety dx might be the 'correct' answer. If it were a TV game show anyway.

            Curious about anyone else who experienced bladder U/F being associated with anxiety, to later get a MS dx.

            Best of luck and keep us posted.

            Comment


              #7
              Thank you again for your support guys! I am headed off to Mayo Clinic on Monday. My mother doesn't trust they will do a good job locally. Still gotta look out for her 25 year old baby, I understand. So I will be getting the MRI's and everything there now. Things have gone downhill. I am physically so exhausted I can barely go anywhere, and hurt all over, so I am very grateful for the opportunity to go to Mayo and get my answers! Will keep you posted! Love and healing thoughts to you all!!!

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