Hi, I'm new to this site. I actually found it on a site I belong to for people who live alone with a disability. Love the phrase Limbo Landers- I've been calling it diagnostic limbo (hell). I spent a year in it and finally received the formal diagnosis this week. It is so affirming to read some of the posts here, from the maddening frustration to seeing there are others here who didn't want to take some of the meds offered in the interim so as not to mask or complicate the diagnosis. (I figured if anyone heard that bit of logic they'd think I was definitely crazy!)
I'm a single parent of a 25-year-old daughter who has multiple special needs. It's been daunting, but we're stronger for it. As much as I was waiting for this diagnosis to enable me to begin the DMT, there's a lot of mixed emotions. They are starting me on Avonex-not worried about injections, just side effects in that it is critical that I continue to function. My symptoms are increasing numbness/tingling feet to knees, now up thighs, hands and face worsening, fatigue, dizziness, intestinal issues. Had my first Solumedrol IV treatment last week as symptoms seemed to be marching along for over a week.
I'm finding online support has been a lifesaver for me.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
I'm a single parent of a 25-year-old daughter who has multiple special needs. It's been daunting, but we're stronger for it. As much as I was waiting for this diagnosis to enable me to begin the DMT, there's a lot of mixed emotions. They are starting me on Avonex-not worried about injections, just side effects in that it is critical that I continue to function. My symptoms are increasing numbness/tingling feet to knees, now up thighs, hands and face worsening, fatigue, dizziness, intestinal issues. Had my first Solumedrol IV treatment last week as symptoms seemed to be marching along for over a week.
I'm finding online support has been a lifesaver for me.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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