Daignosed-kind of
It is probably my fault I went to a neuro on a friend's recommendation a year ago and that I did not catch on that her specialty was dementia and other cognitive issues.
Have been having weird and varied symptoms since 2007 and with good insurance, every test under the sun was done.
Have 2 brain lesions, one has since grown and gotten brighter, have clonic ankle seizures, now on Kepra, and a ton of cognitive issues, like feeling out of it, memory issues, not being able to find the right words, etc. Also have difficulty swallowing, peripheral neuropathy in my feet so off balance and constant tingling and it all started with tingling in my face. Went to Mayo. They had no clue.
Just had a spinal tap and have elevated IgG and MBP but no O bands. So doc says, she is not "sure" of MS but it is leaning that way.
She thinks my symptoms are atypical and seizures, she said, are rare. I guess atypical because I am not experiencing muscle weakness?
I am looking for a specialist, because I need to get a more sure diagnosis because I don't want to wait until more damage is done before I start treatment. However, I am not a fan of pharmaceuticals.
Sorry for the venting, but I know you all know what I am going through. Am reading the Wahl's Protocol, because I am more convinced than ever that my poor diet and autoimmune family issues (brother with Crohn's) are contributing factors.
Does anyone have any thoughts about how to treat before someone says, YES, we know for sure it is MS? My brain issues may cause me to lose my job, which requires much thinking, analyzing, and changing tracks a million times during the day and does not lend itself to fuzzy thinking.
Have been having weird and varied symptoms since 2007 and with good insurance, every test under the sun was done.
Have 2 brain lesions, one has since grown and gotten brighter, have clonic ankle seizures, now on Kepra, and a ton of cognitive issues, like feeling out of it, memory issues, not being able to find the right words, etc. Also have difficulty swallowing, peripheral neuropathy in my feet so off balance and constant tingling and it all started with tingling in my face. Went to Mayo. They had no clue.
Just had a spinal tap and have elevated IgG and MBP but no O bands. So doc says, she is not "sure" of MS but it is leaning that way.
She thinks my symptoms are atypical and seizures, she said, are rare. I guess atypical because I am not experiencing muscle weakness?
I am looking for a specialist, because I need to get a more sure diagnosis because I don't want to wait until more damage is done before I start treatment. However, I am not a fan of pharmaceuticals.
Sorry for the venting, but I know you all know what I am going through. Am reading the Wahl's Protocol, because I am more convinced than ever that my poor diet and autoimmune family issues (brother with Crohn's) are contributing factors.
Does anyone have any thoughts about how to treat before someone says, YES, we know for sure it is MS? My brain issues may cause me to lose my job, which requires much thinking, analyzing, and changing tracks a million times during the day and does not lend itself to fuzzy thinking.
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