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    CIS MEDS OR NO MEDS

    I have read about CIS. I find my understanding is that Dr.s start patients on meds.

    I think i fit the qualifications....will learn more later next month.

    Well i was wondering if anyone has been dx with CIS and did you start DMD or not. Would like to learn more i guess before DR apt. Being my own advicate.

    thanks you
    Sending hugs your way.

    Take Care.....

    #2
    You are correct in thinking that most MS specialist start patients with CIS on DMTs. They will give the patient time to consider their options, probably give them a few recommendations, but it is really up to the patient to decide which med to start on. They will give you general medical information about each medication. You can also go to the National MS Society and look for medications. Here is the link to that site:

    http://www.nationalmssociety.org/Tre...MS/Medications

    You can also look at the medications on our website, but beware, most people who post here are posting the negative effects. Good side effects are rarely ever posted.

    Good luck at your appointment hopefully you won't need medications at all!

    Let us know how it goes!

    Take care
    Lisa
    Disabled RN with MS for 14 years
    SPMS EDSS 7.5 Wheelchair (but a racing one)
    Tysabri

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      #3
      I have a friend, a woman of about 30+ y.o., who was diagnosed with CIS a few years ago. She was started on Copaxone and, after about 1 year her neuro told her that she had progressed to RRMS. I don't know if she is taking Copaxone or another DMT, currently. I wish you luck.
      I hope you don't need meds, either.

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        #4
        Originally posted by lavenderteawithme_33 View Post
        I have read about CIS. I find my understanding is that Dr.s start patients on meds.

        I think i fit the qualifications....will learn more later next month.

        Well i was wondering if anyone has been dx with CIS and did you start DMD or not. Would like to learn more i guess before DR apt. Being my own advicate.

        thanks you
        Hi. I have posted a few times. I am the mother of twin girls, age 11. One twin has been diagnosed with CIS but at high risk of developing MS. Per doctor recommendation, daughter started on medicine right away - avonex injection weekly and she also takes vitamin D3. Dr says they treat CIS at risk of getting MS - the same way as is you had MS

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          #5
          I was diagnosed with CIS with a high risk of developing RRMS in August of 2013. My Dr suggested DMT and gave me my choices to research (Betaseron, Avonex, Copaxone) I started on Copaxone in September and have tolerated it well so far. Will go for follow up MRI's this month to see if it is working. Good luck to you with your decision.
          RRMS: Diagnosed July 2013
          Assistive Device: cane.
          Meds: Copaxone, Ampyra, Vitamin D

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            #6
            Thank you, 22cyclist..JerryD....Shebjo..&Cleobear72...

            For your you input. You each gave me good information . I hope you all had a good weekend.
            Shebjo.......I hope your daughter is doing well on her meds.

            Cleobear72......Hope your MRI later this month shows the meds are doing the job.
            JerryD.....Thanks for telling me about your friend.
            Nice to meet you all and thank again for the input .
            Sending hugs your way.

            Take Care.....

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