Scared... MS specialist appointment soon

[Kyhu3]

Kyhu3: Your symptoms sound pretty much like they could come from anything. The only one I would even worry about writing down is the eye pain, but since you have been cleared by a neuro-ophthalmologist, there is probably nothing more they can add. You can go in and talk about your up and down symptoms, but again they could be coming from anything. I tell you this so you will not worry.

You have had 2 normal MRIs, your bloodwork has come back fine for the initial mimickers of MS or they would be chasing that.

I just think you need this appointment more for confirmation, and that is a good idea. I wouldn't go into it worried about MS though, you have been worked up pretty well for that.

Good luck and let us know how it goes, OK?

Lisa

Hello. Back with an update. Ms specialist says no ms. He was not able to look at my two previous MRI's because the computer would not let him view the image. He said he would have radiology bring it up for him. He also order two evoked potentials visual and median nerve after asking me if I would want to do them. I am super glad he does not think at this time this is ms but he wants to make sure after these tests. Although he told me he still does not think it is. Has no idea what it is and that is the weird thing.

One last question. I asked about having lower MRI's done. Meaning I have just had brain and thought he would want me to have cervical and thoracic and he said no. Is that weird ? Also no mention of spinal tap. Believe me I do not want ms. I just am surprised he can so sure with a clean exam and only two clean brain MRI's.