Hello,
My name is Hannah and I'm a 35 year old wife, and working mom of two lovely girls.
Back in March, I noticed my vision was a little "off" I thought I was just tired, stressed and maybe imbibing a little too much caffeine.
That was on a Saturday. By Monday when I was playing volleyball, I glanced over my shoulder and noticed that there two of my husbands standing there. (and I only married one!) So the double vision bothered me a little, but being a busy mom I was able to brush that off for a little while before calling my dr. The next day (Tuesday) I was working late and noticed that my cheeks were numb and I had tingling in my right thumb and forefinger. I almost went to the ER that night, but again, talked myself out of it. I had however, made an appt for the following week with my ophthalmologist. Wed the double vision was worse, and I made an appt with my PCP. He flat out told me he had no idea and to see my eye dr sooner rather than later. I called and made an appt for the next morning (Thurs).
Thursday came and at my eye dr's appt, she took one look and started writing out a Rx for an MRI. She sent me to the ER for that. I ended up being admitted. That was rough, waiting for the MRI results.
The MRI came back with a few small white spots, but nothing in the areas where they would have expected to see something. I was released and told to not drive for a week (that meant no working either) and to follow up with a neurologist.
Over that week, I was diagnosed with INO, internuclear ophtholmopligia. (sp?) Which is basically when one eye does not track all the way with the other and then the other eye beads/jumps (nystagmus). It was disconcerting, but has gotten better since then.
My first appt with the neurologist was in the beginning of April. He sent me for 3 more MRI's on a 3T machine. All came back clear--except for a slight herniated disc which accounted for the tingling in my thumb and finger. All the blood tests came back normal. And the SSER test came back clear/normal as well.
I waited for insurance to clear the spinal tap and just had that 2 weeks ago. Last Friday we got the results which showed demyelination and there were 5 complete O-bands.
I met with the dr yesterday and he wants to start me on DMT. We talked about the injectables and settled on Tecfidera. We started the approval process, but I'm not sure if it'll be approved since I'm at the CIS stage.
So I guess I'm feeling like I'm in limbo here and was happy to find this site because I can't for sure say that I have MS, but need some support because it's a really stressful time!
My name is Hannah and I'm a 35 year old wife, and working mom of two lovely girls.
Back in March, I noticed my vision was a little "off" I thought I was just tired, stressed and maybe imbibing a little too much caffeine.
That was on a Saturday. By Monday when I was playing volleyball, I glanced over my shoulder and noticed that there two of my husbands standing there. (and I only married one!) So the double vision bothered me a little, but being a busy mom I was able to brush that off for a little while before calling my dr. The next day (Tuesday) I was working late and noticed that my cheeks were numb and I had tingling in my right thumb and forefinger. I almost went to the ER that night, but again, talked myself out of it. I had however, made an appt for the following week with my ophthalmologist. Wed the double vision was worse, and I made an appt with my PCP. He flat out told me he had no idea and to see my eye dr sooner rather than later. I called and made an appt for the next morning (Thurs).Thursday came and at my eye dr's appt, she took one look and started writing out a Rx for an MRI. She sent me to the ER for that. I ended up being admitted. That was rough, waiting for the MRI results.
The MRI came back with a few small white spots, but nothing in the areas where they would have expected to see something. I was released and told to not drive for a week (that meant no working either) and to follow up with a neurologist.
Over that week, I was diagnosed with INO, internuclear ophtholmopligia. (sp?) Which is basically when one eye does not track all the way with the other and then the other eye beads/jumps (nystagmus). It was disconcerting, but has gotten better since then.
My first appt with the neurologist was in the beginning of April. He sent me for 3 more MRI's on a 3T machine. All came back clear--except for a slight herniated disc which accounted for the tingling in my thumb and finger. All the blood tests came back normal. And the SSER test came back clear/normal as well.
I waited for insurance to clear the spinal tap and just had that 2 weeks ago. Last Friday we got the results which showed demyelination and there were 5 complete O-bands.
I met with the dr yesterday and he wants to start me on DMT. We talked about the injectables and settled on Tecfidera. We started the approval process, but I'm not sure if it'll be approved since I'm at the CIS stage.
So I guess I'm feeling like I'm in limbo here and was happy to find this site because I can't for sure say that I have MS, but need some support because it's a really stressful time!
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