Being failed by my doctors and losing hope

[polopuppy]

The Loma Linda referral may be good news but I am not sure why you think your situation does not constitute an emergency. You say you are unable to urinate, have urgency and frequency, blindness in one eye, difficulty walking, new onset numbness, severe pain from the TN, etc. All of these issues are perfectly good reasons to walk into an emergency room in another county.

I live in California and work in healthcare so I am very familiar with Medi-Cal. Any hospital will have to provide care to you, if you present to their ER, regardless of which county you are from. You just have to say that their ER was the closest to you at the time of your emergency.

I am not sure that you really should wait and the wait may be for nothing, as you may not get the referral again. If your symptoms are as severe as you have reported, you need to be seen at a good ER. Go to Loma Linda and get yourself in the door.

I have posted the directions straight from the Medi-Cal Handbook below. It is pretty black and white. No need to wait and plow your way through the bureaucratic red tape. Here it is in their own words:

In an emergency, call 9-1-1 or go to any hospital Emergency Room. Do this, no matter which kind of Medi-Cal you have.

Emergency Care

• An emergency is when you think your health is in serious danger and you need care right away.
• Examples of emergencies are a bad injury, severe pain, a sudden serious illness, or a psychiatric emergency

The link to the entire Handbook is here:

http://www.opa.ca.gov/healthcare/pro...deBook_Eng.pdf

I know when we get beaten down over and over again, it can be hard to advocate for ourselves or to believe that we are worthy but we are. You are worthy of good care and you need to help yourself get it. Obviously, this is just my opinion but please take the time to consider what advise we have given you.

[polopuppy]

I have always loved this poem, ever since I saw the movie Akeelah and the Bee. I hope this poem will lighten your spirit and give you both hope and strength. Maybe it wil help your week of prayer.

Our Deepest Fear
by Marianne Williamson
from A Return To Love: Reflections on the Principles of A Course in Miracles

“Our deepest fear is not that we are inadequate. Our deepest fear is that we are powerful beyond measure. It is our light, not our darkness that most frightens us. We ask ourselves, Who am I to be brilliant, gorgeous, talented, fabulous? Actually, who are you not to be? You are a child of God. Your playing small does not serve the world. There is nothing enlightened about shrinking so that other people won't feel insecure around you. We are all meant to shine, as children do. We were born to make manifest the glory of God that is within us. It's not just in some of us; it's in everyone. And as we let our own light shine, we unconsciously give other people permission to do the same. As we are liberated from our own fear, our presence automatically liberates others.”

[Jrasted79]

Hi all,

Fed up- I have contacted the ms Society to see the specialist but I first have to be seen by a neurologist so once that is done I will be going that route. I have not had a MRI or LP yet and I was very surprised when I landed in the ER confused, having TN and partially blind all they did was a CT scan.

polopup- Thank you for the link to the handbook. I have been on a waiting list for pshcyiatry for like 4 or 5 months now. I am fed up so I am going to see if I can find one in palm Springs, it's quite the drive for me but we are just gonna have to try. I don't have anyone up here really and my mom doesn't drive so it's all up to me, the sick one.

I had brand new symptoms today, Tremors, yay. I was in school and it sucked. I tried to stay but I only made it an hour. I was going to go straight to my doctor but driving was too difficult so I came home and made an appointment for Monday. I live an hour from school and it would have been way out of my way to get to the doctor, all too much when you are shaking and confused.

Im gonna hang in there until next week, if stuff gets denied again I'll just try the ER route again, I'm kind of afraid of that too, I was once berated by an ER doc and was told I can't come in whenever I am in pain, his job is not to diagnose and just to fix what the current problem is and my pain is not as important as people with chest pain. So I am little scared.

I also got my book I ordered yesterday but I can't read it, nothing is sticking in my head, I can't even do my homework. I'm afraid I will fail all my classes, I am a strong person but I can't perform miracles. My mom says just to push through it and get to class, what she doesn't understand is everyday that I go to class are tiny victories!! Some days, I just CAN't do it to the point that it is not safe for me to be on the road. I have to weigh my options you know.