So some of you may have already read my story.
Last January I started working out a lot was getting some headaches and had some hand problems some tingling etc - but it would come and go... so of course doc orders MRI...MRI comes in with non specific white matter lesions about 10 on one side and 15 on the other...
then they sent me for another 3 months later to do again this time of my spine and brain with contrast...
no enhancing lesions and no new lesions. did another 6 months after again - no new or enhancing lesions....
SO MRI's have been stable since last January. They tell me the lesions don't look like MS. However they sent to an MS specialist in Seattle. SHe took a detailed history and wants to keep track of me for 5 years. I have bladder issues where I can hold my pee but once I start I can't control the pressure of my flow at all. It started in my 20s after I had each baby - my toes were numb for months ...
I've had brain fog issues big time - that lasted for a month - I could not remember my husbands phone number daily....
Anyway for the last several months - I've just had some arm/hand weakness and so sure enough in May I had an EMG - it was normal...just two weeks ago I had another and the Ortho agreed I had hand weakness and that he thought it seemed to come from my CNS - repeated the EMG and it was normal just as he suspected because it is in the CNS according to him.
My neuro saw me and has just recently sent me to Physical Therapy. I am just starting this.
Bumped into my neuro today as I was bringing coffee to my husband (another physician) with my kids and he said "yes lets do the LP and then we don't have to think about the problems anymore - we can just forget about it"
He told my husband another physician - that he does not believe it will be positive for MS...my husband wants to do the LP so we don't have to wonder anymore.
SO I guess it's good but why is my hand progressively getting worse???
On top of it now I'm stressed out about the LP - I've had epidurals and I can't stand the feeling. YUCK!
Last January I started working out a lot was getting some headaches and had some hand problems some tingling etc - but it would come and go... so of course doc orders MRI...MRI comes in with non specific white matter lesions about 10 on one side and 15 on the other...
then they sent me for another 3 months later to do again this time of my spine and brain with contrast...
no enhancing lesions and no new lesions. did another 6 months after again - no new or enhancing lesions....
SO MRI's have been stable since last January. They tell me the lesions don't look like MS. However they sent to an MS specialist in Seattle. SHe took a detailed history and wants to keep track of me for 5 years. I have bladder issues where I can hold my pee but once I start I can't control the pressure of my flow at all. It started in my 20s after I had each baby - my toes were numb for months ...
I've had brain fog issues big time - that lasted for a month - I could not remember my husbands phone number daily....
Anyway for the last several months - I've just had some arm/hand weakness and so sure enough in May I had an EMG - it was normal...just two weeks ago I had another and the Ortho agreed I had hand weakness and that he thought it seemed to come from my CNS - repeated the EMG and it was normal just as he suspected because it is in the CNS according to him.
My neuro saw me and has just recently sent me to Physical Therapy. I am just starting this.
Bumped into my neuro today as I was bringing coffee to my husband (another physician) with my kids and he said "yes lets do the LP and then we don't have to think about the problems anymore - we can just forget about it"
He told my husband another physician - that he does not believe it will be positive for MS...my husband wants to do the LP so we don't have to wonder anymore.
SO I guess it's good but why is my hand progressively getting worse???
On top of it now I'm stressed out about the LP - I've had epidurals and I can't stand the feeling. YUCK!
Comment