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"sunburn" feeling, not sure if it's a symptom?

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    "sunburn" feeling, not sure if it's a symptom?

    So this past weekend I was finally able to get out and do some of the things I had planned (it's been over two months since that has happened, due to fatigue, pain, and some none medical stuff).

    Sunday I took my two dachshunds out to an earthdog practice. I admit that I did not think ahead and bring a folding chair, so I spent most of the time there standing, or sitting on the ground. Also, it was not a hot day, mid-upper 70s, but by the time I got there all the shady spots had been taken. Because if it being quite windy, I was wearing a jacket.

    After being there a couple hours, I started feeling like I was overheating. I had my son get some more water out of the car and I found a scrap of shade to sit in. I started to take my jacket off, but the wind on my skin was cold to me, so put it back on. Then I noticed that the vision in my right eye was blurry, like it had been a couple months ago when I was diagnosed with ON. I gathered up the dogs and my kid and went to the car. The blurriness got better after about a half hour and we went home.

    Later that evening, I started feeling like I was sunburned all over my back and shoulders. I thought, no way that could be, I was wearing a shirt and a jacket on top, so not like I had on anything thin that I could have been sunburned through the fabric. I checked in the mirror and had my husband look. I had a very faint sunburn on my neck on one side, but nothing anywhere else. But still I feel like my whole back and shoulders has a bad sunburn.

    Is this a symptom? Some type of nerve neuropathy or something?

    #2
    not sure if this helps but this is one of the most common complaints from my boyfriend who has a pretty severe case of Fibromyalgia. On the other hand, I've been given that tender point test and did not "pass" you could say and my doctors said that my other symptoms do not fit a Fibro diagnosis but just recently, like last week, I got that sunburn feeling too. I live in the desert and during the winters it is freezing cold, we even get snow, so I know it was not a sunburn either. now that I think of it I have been pretty much bed ridden for a few weeks now so I havent even gone out much, no way it could be a sunburn.

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      #3
      Hmmm... That's interesting. Well, i guess I'll just add it to my list of symptoms that don't add up for when I see my new dr Monday.

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        #4
        I haven't had this as an MS symptom, but a couple of years ago when I had shingles, as I started to break out, it felt like that. I kept complaining that it felt like I had a bad sunburn. Obviously it was just part of the neuropathic pain that accompanies the fun that is shingles.... Point is, having experienced that sensation in conjunction with something else that causes nerve pain, I can see how this could be an MS thing.

        Hope it goes away soon- I know it's not very pleasant.
        RRMS 1/16/13
        Ocrevus 2/19/18

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          #5
          yup just had it - they say - neuropathic pain - lasted three weeks...

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            #6
            Thanks for your comments. So I'm thinking it's definitely got to be nerve related somehow. Still have it, and it's driving me crazy. But I keep telling myself it's better than some of the other stuff I'm dealing with.

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              #7
              Went to bed with the "burn"....

              And woke up this morning with the same area feeling cold and prickly, and surface numbness. Now I'm really not sure what's up. I'm somewhat in between doctors right now, I have an appointment with my new family dr on Monday. and I'm not calling back that first neurologist. I can deal with it til then.


              **Moderator's Note -word edited out as per Guideline 4. KEEP IT CLEAN: Use of profanity is not permitted**

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                #8
                by the time my doctor got back to me it was going away...but he prescribed me Lidocaine patches....I guess they work great. Just an FYI - if you want to ask for some....

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                  #9
                  Oops!!

                  So very sorry about the word. I just was not thinking.

                  I was talking to a couple of friends about it tonight, and one of them (who has fibromyalgia) says that she gets this a lot. Interesting. I didn't realize so many symptoms overlapped? But fibro wouldn't explain my balance issues or trigeminal neuralgia, correct? Or the optic neuritis.

                  So many questions... I hope I get another specialist referral Monday and that the appointment won't be too far away...

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                    #10
                    You're exactly right, the symptoms you just listed are some of mine that my doctor said did not fit with Fibromyalgia. I've done plenty of research and I have found that a good amount of people with MS have been diagnosed with Fibromyalgia as well. It kind of seems like a piggy back illness. I don't think there is much extra they can do for fibro because my research indicates that medications commonly used for fibro have also been used to treat MS, primarily medicines that calm the nerves down such as lyrica, Neurontin, amitriptyline, etc.

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