I hope I have posted this in the right place. I have never really done forums before. I've been "sick" for two years and it's all been down hill, no plateaus, no getting better, although in the beginning I had a good week here and there in between the bad weeks or months, now it just seems to be all the time.
I had the bad experiences that it seems many do with the doctors, especially since I am young (33). I can't tell you how many times they thought I was lying and I would leave in tears of frustration and pain. My journey started with numbing and tingles then went to straight pain. I am now having the face pain with the numbing of my face, gums, and nose. Usually it passes pretty quickly but the past few times the numbness has hung around most of the day. Is that normal?
I finally got to see 2 neurosurgeons last week that they both suspect probable MS but now because I am on medi-cal (welfare) I have to wait 3 months for approval to see a neurologist. Then I get to wait another 3 months for approval for lumbar puncture. The neurosurgeons were shocked that no other doctor had done a work up for MS. At least I know I'm not going crazy now.
As of Nov. 2011 it had gotten so bad I couldn't work. I had a GREAT job but just couldn't get through the pain, fatigue, and inability to organize and focus like I used to. I thought this whole time I had to have a diagnosis to get disability, silly me, but I learned it was untrue after I went to file last week. I wish I would have done it sooner.
I don't get much support from my family. They think I am lazy or it just can't be that bad. One person made me fall apart a few days ago because he said it was despicable of me to be on welfare and think I have the right to be on disability. He said so what you might have MS take some medicine and it will go away. I can't believe the ignorance out there. Anyways sorry for venting, I figure anyone here can relate.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
I had the bad experiences that it seems many do with the doctors, especially since I am young (33). I can't tell you how many times they thought I was lying and I would leave in tears of frustration and pain. My journey started with numbing and tingles then went to straight pain. I am now having the face pain with the numbing of my face, gums, and nose. Usually it passes pretty quickly but the past few times the numbness has hung around most of the day. Is that normal?
I finally got to see 2 neurosurgeons last week that they both suspect probable MS but now because I am on medi-cal (welfare) I have to wait 3 months for approval to see a neurologist. Then I get to wait another 3 months for approval for lumbar puncture. The neurosurgeons were shocked that no other doctor had done a work up for MS. At least I know I'm not going crazy now.
As of Nov. 2011 it had gotten so bad I couldn't work. I had a GREAT job but just couldn't get through the pain, fatigue, and inability to organize and focus like I used to. I thought this whole time I had to have a diagnosis to get disability, silly me, but I learned it was untrue after I went to file last week. I wish I would have done it sooner.
I don't get much support from my family. They think I am lazy or it just can't be that bad. One person made me fall apart a few days ago because he said it was despicable of me to be on welfare and think I have the right to be on disability. He said so what you might have MS take some medicine and it will go away. I can't believe the ignorance out there. Anyways sorry for venting, I figure anyone here can relate.
** Moderator's note - Post broken into paragraphs for easier reading. Many people with MS have visual difficulties that prevent them from reading large blocks of print. **
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