I love this forum - I can have 2 different illnesses and meet people with the same combo (lucky us ). I did the PET scan yesterday. I thought a PET scan does the whole body but to me the disc looks like it's only that one breast. I have the disc (don't really understand it) and I'll have the report in a week.
The oncologist called me (she's very young and nice [not full of herself like older Drs often are] but being led by a much older experienced oncologist so hopefully that will give me good care since they will actually discuss my case all the time). She spoke with the neuro and they're definitely stopping my Tysabri but she thinks the chemo will help my MS too. I have an appointment with my neuro today so I'll find out if he wants to give me steroids meanwhile and then what the plan is. After I get the results of the PET scan I'll go to the oncologist and they'll start chemo.
I'm still avoiding telling people. I told 3 of my sisters and my parents - Didn't tell my 4th sister yet just cause she just made a wedding and I didn't want to put this in. I didn't tell my brother cause I'm sure his wife will drive me crazy (that's her personality). I didn't tell my husband's family cause I don't want hundreds of well-meaning phone calls every day. I told one very close friend of mine who also had BC ten years ago and she's good for medical advice too.
So I'm happy that I can keep posting here - thanks
The oncologist called me (she's very young and nice [not full of herself like older Drs often are] but being led by a much older experienced oncologist so hopefully that will give me good care since they will actually discuss my case all the time). She spoke with the neuro and they're definitely stopping my Tysabri but she thinks the chemo will help my MS too. I have an appointment with my neuro today so I'll find out if he wants to give me steroids meanwhile and then what the plan is. After I get the results of the PET scan I'll go to the oncologist and they'll start chemo.
I'm still avoiding telling people. I told 3 of my sisters and my parents - Didn't tell my 4th sister yet just cause she just made a wedding and I didn't want to put this in. I didn't tell my brother cause I'm sure his wife will drive me crazy (that's her personality). I didn't tell my husband's family cause I don't want hundreds of well-meaning phone calls every day. I told one very close friend of mine who also had BC ten years ago and she's good for medical advice too.
So I'm happy that I can keep posting here - thanks
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