I know the feeling coco.
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TRYING TO MEET PEOPLE MY AGE 28
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26 female in CA
I am 26 years old..turning 27 in 3 months. I was diagnosed 3 weeks ago after my "first" episode of numbness in my feet. I don't know when this "started" but I have experienced fatigue for many years and it has gotten worse. Previously, doctors told me "everyone gets/is tired" but I tried to explain that it is different than just tired. At least my feelings are being confirmed now.
I live in southern Cali but don't know anyone with MS. I have looked up support groups but am interested in meeting others my age. I am scared of meeting people struggling with this disease for many years and much older who are experiencing very progressive symptoms or disability. The future scares me more than ever.
I am hoping and staying positive. But it is scary. Anyone else scared?
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too old to post, but . . .
I hope not to old to say I think you all are brave and strong! I hope you might consider an idea (philosophy?) I find useful. I.E., assuming you've found your right treatment, that you eat healthy and exercise even if/when you'd rather not, and that you keep well enough informed to know when the "white coats" are full of beans, denial can be very good for your health, psychological and physical. Stay strong!
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BigA
Ami,
Cate is absolutely correct. I'm diagnosed almost 2 years in January, mine started in my feet like you and I'm now only sometimes scared by those with the disease a long time.
When I was first diagnosed, I was desperate to find an image of someone without a wheelchair and who was working. I reached out to anyone I could find and eventually found my mom's doctor who is young, has MS and is still working.
I'm too old for this group, but you can contact me on the email address on the profile if you ever wanted to chat or some positive advice.
But definitely do the exercise. It's beneficial for quality of life and may effect progression.
BigA
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