Where to start...
I have been diagnosed with MS for 12 years. I have never had a "knock you on your butt" exasterbation but have had several neuros tell me I definitely had RRMS. About 11 years ago, I had a neurologist who said I was SP so basically I wasn't diagnosed until I reached that stage. My first doc, who diagnosed me,said he was surprised I was walking and functioning, based on my MRI. Fast forward to now. I use a wheelchair for almost all movement (although I give myself a high five when I can shuffle to the bathroom).
Well, the stress level in me has skyrocketed the last few days.
My hubby does a great job taking care of me. I really can't do much anymore. He does all the things from trimming the trees to cooking dinner. Honestly, most days I feel totally worthless. He does some freelance work from home but this year it has been almost nothing.
He feels trapped. He says if he goes out and gets a job we would have to pay someone to take care of me and it would be a wash.
He is quite the handyman. (He practically built our house.) The house needs some work but he is very capable of doing it. Unfortunately our insurance company thought it was taking too long and cancelled our policy. At this point we don't have a mortgage so we are probably going to go without. Again, he says he feels trapped - can't sell until fixed up and can't find time to do the work.
I feel like such a burden but he tells me I am not. I feel I am holding him back. He says it is other things.
I know he loves me. I just wish I could do more.
Sorry for the long rant. I needed to vent to someone who might understand.
And if course, it is now time to deal with healthcare.
I have been diagnosed with MS for 12 years. I have never had a "knock you on your butt" exasterbation but have had several neuros tell me I definitely had RRMS. About 11 years ago, I had a neurologist who said I was SP so basically I wasn't diagnosed until I reached that stage. My first doc, who diagnosed me,said he was surprised I was walking and functioning, based on my MRI. Fast forward to now. I use a wheelchair for almost all movement (although I give myself a high five when I can shuffle to the bathroom).
Well, the stress level in me has skyrocketed the last few days.
My hubby does a great job taking care of me. I really can't do much anymore. He does all the things from trimming the trees to cooking dinner. Honestly, most days I feel totally worthless. He does some freelance work from home but this year it has been almost nothing.
He feels trapped. He says if he goes out and gets a job we would have to pay someone to take care of me and it would be a wash.
He is quite the handyman. (He practically built our house.) The house needs some work but he is very capable of doing it. Unfortunately our insurance company thought it was taking too long and cancelled our policy. At this point we don't have a mortgage so we are probably going to go without. Again, he says he feels trapped - can't sell until fixed up and can't find time to do the work.
I feel like such a burden but he tells me I am not. I feel I am holding him back. He says it is other things.
I know he loves me. I just wish I could do more.
Sorry for the long rant. I needed to vent to someone who might understand.
And if course, it is now time to deal with healthcare.
Comment