I'm 34, have confirmed I have a lesion on my C2 (as well as C3, C5, and C7, plus like 4-5 on my brain -- all seem to be dormant at the moment as far as we can tell). I've had symptoms from my spinal lesions for years, but previous MRI's were unable to detect them as they were too small ("possibly microscopic damage?" one neuro postulated), or too light ("shadows"). Now, it's been confirmed that yes, there are *lesions* on my spine, and yes, this is the cause of these symptoms.
Having a lesion on my C2 spine freaks me the hell out. Having symptoms from it, that I can see and feel and have to deal with in a real tangible way, just drives it home. The symptoms aren't bad, and overall I'm actually very fortunate. But... yeah. The fear is eating at me.
Last night, while trying to fall asleep, my mind wandered into the fear that I could stop breathing in my sleep. I woke up in a bit of an anxiety attack. Sleep over the past couple weeks, since seeing my neuro, has been getting harder and harder due to my anxieties.
I don't know what exactly I'm asking for with this post, just feeling like I'm losing it & know that talking about it is a good thing. ..?
Anybody with spinal lesions that can relate? Anybody with a sense of existential dread about this disease?
Thanks,
Sara
Having a lesion on my C2 spine freaks me the hell out. Having symptoms from it, that I can see and feel and have to deal with in a real tangible way, just drives it home. The symptoms aren't bad, and overall I'm actually very fortunate. But... yeah. The fear is eating at me.
Last night, while trying to fall asleep, my mind wandered into the fear that I could stop breathing in my sleep. I woke up in a bit of an anxiety attack. Sleep over the past couple weeks, since seeing my neuro, has been getting harder and harder due to my anxieties.
I don't know what exactly I'm asking for with this post, just feeling like I'm losing it & know that talking about it is a good thing. ..?
Anybody with spinal lesions that can relate? Anybody with a sense of existential dread about this disease?
Thanks,
Sara
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