why why why????????

[gklindera74]

MS has taking a lot from me and wont stop it has taking my ability to walk, control of my bathroom issues, cant function sexually and on and on now it is taking the vision in my left eye, why wont it just stop and leave me alone!!!!!!!!!!Has anyone else had MS just attack them so hard this stuff can be so cruel but I do stay strong somehow I think its an ability giving to me to deal with all this crazy stuff......

[Kimba22]

Hi gklindera,

I'm sorry MS has been hitting you so hard. I hope it will slow down & stop soon! I can relate and also wish it would stop. At least no one can say I didn't try ~ I've been on 7 different DMT's (had some serious adverse reactions to 3).

It makes no sense why it seems to be so much more aggressive for some of us. I'm sure one day they'll understand why, but keep hoping there's a breakthrough soon that'll repair all the damage done because of MS. Hopefully, we'll both see that to fruition in our lifetime.

I'm glad you have been able to stay strong despite the disease. It can get to the best of us. I just try to remember it's put me on a path to make a difference somehow, whether it's in who I've met, the influence this has had on my family, or maybe even medically (at least my drs. have learned a thing or two because of me ). Of course, it's a path I still wish I wasn't on. Seriously, like you, I've had enough already.

I do hope you soon get a much deserved break soon from this disease.

Take care,

[Marco]

Sorry to read about your situation. MS can certainly be frustrating and cruel. I'm glad you are able to stay positive and strong as your attitude certainly plays a role in your quality of life (despite the circumstances).

I went from being "employee of the year" to disabled and unemployed in 10 days. In those 10 days, I lost my ability to walk, talk, drive, etc. You can read about some of it here: http://www.msworld.org/forum/showthread.php?t=122432
I spent a year in rehab and have regained certain abilities, but certainly not half of them. Now 14 months after that flare, I have optic neuritis and had lost the bottom half of my vision according to the doctor.

If you have the ability to see medical specialists please do so. Find a good urologist, neuro-opthamologist, physical therapist and a good counselor(i.e. life change/grief/chronic illness). These people can really help you develop a game plan to fight back and try to regain as much as possible.

Again, I'm sorry you're having such a rough flare up and progressive time period. I hope the disease relents quickly for you and allows you time to heal up and reclaim your lost capabilities. Please keep us informed on how you doing.

[hparks]

Why, indeed?!

I feel for you buddy. When I was first dx'd it hit me hard. I don't know if it's all the medications I've tried, or my positive attitude but I'm a little better today. I stay positive because I know there are lots of people out there with MS who have it a lot worse than I.

There's an independent documentary that recently came out called, "When I Walk"; by Jason DaSilva. I haven't seen it yet but, the people who have seen it spoke highly of it. Sounds similar to your sudden on set.

[dave0404]

WHY is the question

I feel for you and can completely understand what you are going through with all of these MS issues. I too have ask myself that three letter question many times.

I was also hit pretty severely; Bathroom issues, problems walking, vision problems in both eyes(complete loss). And the only thing that I can say is, keep that positive attitude and your head up. (a great mean of strength is family and support)

After two years of all those problems, things started to turn around once the correct medication for me came along. I am now symptom free. I hope and pray that this is also able to happen for you with these struggles.

David

[golfore]

Hi Glenn,

I went 25 years waiting for MS to give me some major issues, until within about 3-4 months I went from mostly functional to a wheel chair. Bowel, bladder, sexual issues,,,,,,, numbness, no use of my hands...

I had MS,,,, but I some how developed cervical spinal stenosis which was causing all my problems. My MS neuro took 4 months to discover the problem. I had surgery and recovered some of my functions. I'm not implying you have something other than MS causing your problems. Just try to hang in there.

I hope you post a little more often.

[Dale76]

MS has taking a lot from me and wont stop it has taking my ability to walk, control of my bathroom issues, cant function sexually and on and on now it is taking the vision in my left eye, why wont it just stop and leave me alone!!!!!!!!!!Has anyone else had MS just attack them so hard this stuff can be so cruel but I do stay strong somehow I think its an ability giving to me to deal with all this crazy stuff......

For me it is just as sure as the sun will rise each day my MS symptoms will get worse. Just this week I went from not being itchy to having full body itching! Yes it is a fresh hell daily. The only good news is that your body is up to the challenge... I say that because I can remember saying 3 years ago that if I got worse I didn't know how I was going to deal with it... Now 3 years later I literally a thousand times worse, what I felt then was nothing and yet I'm still here so I guess I'm dealing with it!

Good luck to you in the road ahead.