I'm a quadriplegic that requires much home care and need HELP in finding a new place to live
I still live in the home of my old gal friend who has tried to make it somewhat accessible for me.
She installed grab bars in her bathroom-hall-bedroom but I can’t use her bathroom safely for it is a very narrow room with an un-accessible bathtub/shower sink and commode.
I have to park my power chair at the bathroom door and get myself 6 feet to the toilet.
Most times I can drag my feet back and forth…but sometimes my legs can’t move at all
Then its panic button 911 time…to get the emergency squad to lift me off the floor...THAT'S SCARY
When I first moved in with her I was able to walk ok back in 2007...As the years passed my ability to walk grew worse & worse; you know 1st the cane..then a walker..then finally the power wheelchair/scooters that I am confined to since 2010 ...all day when not in the old low soft hard to get up and out of waterbed.
The only reason she still puts up with me is the $money$ that I give her...she doesn't take my entire SS check but I do give her most of it.
She is on Social Security and is ---partially disabled herself and needs my financial assistance--she suffers with arthritis in her knees and bad back plus obesity and can't really manage to take care of me very well...nor does she care to anymore...now she wants me out of her house.
I can't use her shower or high garden tub at all anymore because I can no longer lift my feet up to step up in or over the high sides.
My wash ups are done now at the kitchen sink where she gives me my wash up or wash down "water boarding" once or twice a week. I really never get a through body cleaning...my feet were only washed once this year!
THEY LOOK MUCH BETTER SINCE THEY ARE CLEAN
Since I can't use my hands or feet for much of anything anymore...I require total home care nowadays...washing-dressing-cooking -assistance getting up and out of bed...she has to help me with the pee bucket urinal in the night and in the mornings...& the bathroom wiping after bowel movements-desitin application on my bottom--external catheter installation & urine tank draining...just to name a few of the things she reluctantly does for me...
I can't afford to live in an assistive living facility or want to be in a nursing home or have a visiting angel or CNA on duty every day..to do the glucose checking etc.
So what or who would want to be a live-in home health care worker for someone like me?
NOT MANY WOULD...IT'S A DIRTY STINKIN JOB
And unless I can afford to pay visiting angels 20 bucks an hour or 200 dollars a day for only 10 hours...what about the other 14 hours in the day? I’m not rich..just live on my social-un-security check
WHO CAN AFFORD 24 HOUR PERSONAL CARE? I can’t but I do perhaps need it
So what’s someone like me alternative? What should be my plan B or C? My family does not care to help me at all
ANY IDEAS OF WHAT TO DO NEXT OR WHERE TO GO WILL BE APPRECIATED...
I still live in the home of my old gal friend who has tried to make it somewhat accessible for me.
She installed grab bars in her bathroom-hall-bedroom but I can’t use her bathroom safely for it is a very narrow room with an un-accessible bathtub/shower sink and commode.
I have to park my power chair at the bathroom door and get myself 6 feet to the toilet.
Most times I can drag my feet back and forth…but sometimes my legs can’t move at all
Then its panic button 911 time…to get the emergency squad to lift me off the floor...THAT'S SCARY
When I first moved in with her I was able to walk ok back in 2007...As the years passed my ability to walk grew worse & worse; you know 1st the cane..then a walker..then finally the power wheelchair/scooters that I am confined to since 2010 ...all day when not in the old low soft hard to get up and out of waterbed.
The only reason she still puts up with me is the $money$ that I give her...she doesn't take my entire SS check but I do give her most of it.
She is on Social Security and is ---partially disabled herself and needs my financial assistance--she suffers with arthritis in her knees and bad back plus obesity and can't really manage to take care of me very well...nor does she care to anymore...now she wants me out of her house.
I can't use her shower or high garden tub at all anymore because I can no longer lift my feet up to step up in or over the high sides.
My wash ups are done now at the kitchen sink where she gives me my wash up or wash down "water boarding" once or twice a week. I really never get a through body cleaning...my feet were only washed once this year!
THEY LOOK MUCH BETTER SINCE THEY ARE CLEAN
Since I can't use my hands or feet for much of anything anymore...I require total home care nowadays...washing-dressing-cooking -assistance getting up and out of bed...she has to help me with the pee bucket urinal in the night and in the mornings...& the bathroom wiping after bowel movements-desitin application on my bottom--external catheter installation & urine tank draining...just to name a few of the things she reluctantly does for me...
I can't afford to live in an assistive living facility or want to be in a nursing home or have a visiting angel or CNA on duty every day..to do the glucose checking etc.
So what or who would want to be a live-in home health care worker for someone like me?
NOT MANY WOULD...IT'S A DIRTY STINKIN JOB
And unless I can afford to pay visiting angels 20 bucks an hour or 200 dollars a day for only 10 hours...what about the other 14 hours in the day? I’m not rich..just live on my social-un-security check
WHO CAN AFFORD 24 HOUR PERSONAL CARE? I can’t but I do perhaps need it
So what’s someone like me alternative? What should be my plan B or C? My family does not care to help me at all
ANY IDEAS OF WHAT TO DO NEXT OR WHERE TO GO WILL BE APPRECIATED...
MS'ers may not all walk--
but, we can still roll along-so lets 
rock-n-roll as a power mobility group 
I do have an extra scooter & Powerchair 
The cat or my caregiver won't ride with me so maybe you could?
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