63 and undiagnosed

[baydenoc]

I have been having symptoms since my last pregnancy at age 32. I actually had undiagnosed seizures in my early 20s and have had 3 episodes of split second loss of consciousness since then. One during my last preg, one in my 50s and one this past Sat. All causing falls. I have all the classic symptoms the worst being balance and spastic legs making walking difficult. I am having bowel and bladder problems. Occ. tremor right leg and arm. I have many more issues but I am having trouble finding the right Neuro. My MD feels it could be MS and a Neuro in WI said he couldn't rule it out but wouldn't treat anyway. He gave my problems a genetic disease name and after looking that up I knew it didn't describe me. Can someone give the direction to go. I know they say no dx after 60 of MS but this has been going on for 30 yrs and I ignored the symptoms. Please help

[jbell2435]

Just wanted to say hi and welcome! I'm not sure I have answers for you, but I'm not sure why '60' would be a magic age for no dx??

I would pursue an answer based on your symptoms (had you not researched MS). I was having issues with my r leg and did not suspect MS, so I went in and layed out my issues and answered the neuro's questions (except I fibbed about the bladder problems, didn't know that was important for them to know!). Also, some of these sx we have are not necessarily from MS, but could be age related as well (loss for words, bladder come to mind).

Have you had MRI's, other tests to rule out other dx??

If it were me, I would try to get into a MS neuro if it has been suggested that it could possibly be. In the mean time, your PCP should be able to help with some of the sx management.

Good luck to you in finding answers...

[baydenoc]

Thank you jbell

I entered a thread with as much info about me as poss but it has not posted yet.
Thank you for the welcome. I am a Registered Nurse and plan to keep looking for answers. I would love to find a Neuro that thinks outside the box. My fear is that this will continue with no DX until ins runs out and Medicare takes over and they will no longer allow me to keep looking.

[techie]

Some atrophy is normal at our age ( I am 62)
techie

[mjan]

Hello and welcome Baydenoc!

I am also 63 and finally got an MS diagnosis at age 61 but have had symptoms for several decades. It was an up and down battle. I too have had seizure-like signs, but epilepsy has been ruled out . I no longer word due to disability. I have mostly cognitive and spasticity issues.

Just wanted to say hello and that I am from Wisconsin.
Hope you get the answers you deserve..and soon.

You can write me anytime, via email in my profile.

Good luck, Jan

[baydenoc]

Thank you

Thank you for the info regarding your symptoms. I want to know I am not alone. Most people that aren't even medical tell me it cant be MS.

My epilepsy was ruled out when I was in my 20's.
Is your Neuro in WI? I don't know where to go.

[mjan]

Thank you for the info regarding your symptoms. I want to know I am not alone. Most people that aren't even medical tell me it cant be MS.

My epilepsy was ruled out when I was in my 20's.
Is your Neuro in WI? I don't know where to go.

Hi again! I see a neurologist who specializes in epilepsy AND MS. She is in Racine and I see her in Franklin. I did see an MS specialist @ Froedtert but she just left. There is another one, Dr Khatri in Milwaukee who used to be my MS doc.

Where do you live? Or email me if you like..

Jan