I was diagnosed 2 months ago after having my 2nd attack... I think... The MRI showed extensive damage and my neurologist said it is likely that I have had it for a few years without realizing that it was MS. I knew that something was weird and kept going to my primary until I started having trouble seeing in my right eye.
I have this glare in my right eye that never fully goes away and after getting bounced from dr to dr, a retina specialist sent me to a neurologist. The first visit with the neurologist, my symptoms had gone away but I still went because it took a while to get in. 2 months later my symptoms came back and then some... I couldn't walk a straight line, I kept twisting my left foot and I had double vision every morning for the first hour or two I was awake. They got me in quickly and at that point I couldn't drive so my boyfriend drove me. (He was talking marriage on the way there. The topic never came up again and he broke up with me the day I was diagnosed). The dr sent in an order for an MRI Stat and told me that he thought it was MS because my symptoms were textbook. I then went home to find out what the heck MS was...
I couldn't hide it from work unless I wanted to get sent for drug tests on a daily basis. It was pretty obvious something was wrong. It only got worse all too fast and I was on bed rest for 2 weeks after getting the MRI back and getting diagnosed. My double vision and balance were so bad I could not walk so the dr had me do steroid infusions. When I had the lumbar puncture, the hole didn't seal itself back up. So the beginning has been fairly traumatic.
Because of how it has been I am really scared about how much worse it will get. I am a single mom of two. I am worried about how this is going to affect everyone else. I am scared of ending up alone forever (Which should be the least important thing- but I'm 25 and it is a concern for me) and I can't get past the fears. I feel like I'm fine and come to terms with this disease and then I can't stop crying. I joined this site in the hopes that talking about it with people who truly understand will help. I have always been very optimistic and that part of me is just hiding I hope.
Thanks for reading my novel!
I have this glare in my right eye that never fully goes away and after getting bounced from dr to dr, a retina specialist sent me to a neurologist. The first visit with the neurologist, my symptoms had gone away but I still went because it took a while to get in. 2 months later my symptoms came back and then some... I couldn't walk a straight line, I kept twisting my left foot and I had double vision every morning for the first hour or two I was awake. They got me in quickly and at that point I couldn't drive so my boyfriend drove me. (He was talking marriage on the way there. The topic never came up again and he broke up with me the day I was diagnosed). The dr sent in an order for an MRI Stat and told me that he thought it was MS because my symptoms were textbook. I then went home to find out what the heck MS was...
I couldn't hide it from work unless I wanted to get sent for drug tests on a daily basis. It was pretty obvious something was wrong. It only got worse all too fast and I was on bed rest for 2 weeks after getting the MRI back and getting diagnosed. My double vision and balance were so bad I could not walk so the dr had me do steroid infusions. When I had the lumbar puncture, the hole didn't seal itself back up. So the beginning has been fairly traumatic.
Because of how it has been I am really scared about how much worse it will get. I am a single mom of two. I am worried about how this is going to affect everyone else. I am scared of ending up alone forever (Which should be the least important thing- but I'm 25 and it is a concern for me) and I can't get past the fears. I feel like I'm fine and come to terms with this disease and then I can't stop crying. I joined this site in the hopes that talking about it with people who truly understand will help. I have always been very optimistic and that part of me is just hiding I hope.
Thanks for reading my novel!
Comment