Hi, newbie here!
I don't have MS, I'm here for my boyfriend. He's 28yo, diagnosed aged 24, betaferon, 1 relapse a year after, moved to tysabri. no problems since! or so I thought...
Since he was diagnosed I've been so interested in natural medicines and nutrition. I wish I could go back to university and change my degree lol. I spend a lot of my free time reading and researching, hoping to find things we can change in our lifestyle to better him.
You see, my bf and I rarely talk about ms. Its our way of not acknowledging it, or worrying or stressing. Its so unknown, so why stress. That's all good being optimistic and trying to be 'normal', but unfortunately he takes it to the next level and drive me mad- he still smokes (neuro made him quit, but he only last 1 year) and he still binge drinks when we socialise with mates. I don't like harrassing him and sounding like a parent. Its up to him to change his ways, I can't force him and I wish he would just consider some better ways to look after himself. I do all this reading and research and he listens to me, but he doesn't want to do things that may make him look/feel different.
Some things I've become very interested in:
-eliminating grains and sugar from our diet. Well, my diet really. bf still eat bread/pasta/rice/few lollies much to my horror. But he's improved soooo much to what he was like when he was diagnosed- he used to eat takeaway 4 times a week, no fruit, lots of junk etc. so he does eat hardly any processed foods
-Another thing I'm hoping for him to embrace is specifically the paleo diet, or primal lifestyle diet. I find it so fascinating how MS is a 'modern' disease, and I think its linked to the change in human's diet, ever since the agriculture revolution began (and grains started to be farmed/consumed). Its based on the theory that grains (and eggs and milk) cause leaky gut syndrome, and leaky gut is needed in order for MS to exist. (theres a good video online by Dr Loren Cordain and MS explaining this). Again I look back to his old diet pre diagnosis and shake my head at how bad he used to eat. So in our home we have meat fish eggs, some dairy and more meat, veges, fruit, and my bf is really god with eating all of these with me, he still eats some bread tho.
Of course I wish he would quit smoking, as there's lots of studies linking ms is higher in smokers
Anyway (geez this is a long post) this last week only, I think he's had a flare up. His got pain in one leg and he's having trouble walking, and its affecting his work. He works full time, we have a mortgage, so I'm getting worried. He hadn't had a relapse since 2008, and the only symptoms he's had was constant pins and needles in his fingertips, and maybe some fatigue (he never whinges/mentions about anything).
So I'm starting to remember how freaked out I was when he was first diagnosed.. I'm scared how how bad this flare up will be, I'm scared of what it could entail in our future. My biggest fear is one he wont be able to walk.
He doesn't want to go to his neuro, wants to brave it out, and he doubts its even the ms playing up! he's blaming it on work, although he did nothing out of the ordinary. Its winter here too, so could be the change in weather.
I don't have MS, I'm here for my boyfriend. He's 28yo, diagnosed aged 24, betaferon, 1 relapse a year after, moved to tysabri. no problems since! or so I thought...
Since he was diagnosed I've been so interested in natural medicines and nutrition. I wish I could go back to university and change my degree lol. I spend a lot of my free time reading and researching, hoping to find things we can change in our lifestyle to better him.
You see, my bf and I rarely talk about ms. Its our way of not acknowledging it, or worrying or stressing. Its so unknown, so why stress. That's all good being optimistic and trying to be 'normal', but unfortunately he takes it to the next level and drive me mad- he still smokes (neuro made him quit, but he only last 1 year) and he still binge drinks when we socialise with mates. I don't like harrassing him and sounding like a parent. Its up to him to change his ways, I can't force him and I wish he would just consider some better ways to look after himself. I do all this reading and research and he listens to me, but he doesn't want to do things that may make him look/feel different.
Some things I've become very interested in:
-eliminating grains and sugar from our diet. Well, my diet really. bf still eat bread/pasta/rice/few lollies much to my horror. But he's improved soooo much to what he was like when he was diagnosed- he used to eat takeaway 4 times a week, no fruit, lots of junk etc. so he does eat hardly any processed foods
-Another thing I'm hoping for him to embrace is specifically the paleo diet, or primal lifestyle diet. I find it so fascinating how MS is a 'modern' disease, and I think its linked to the change in human's diet, ever since the agriculture revolution began (and grains started to be farmed/consumed). Its based on the theory that grains (and eggs and milk) cause leaky gut syndrome, and leaky gut is needed in order for MS to exist. (theres a good video online by Dr Loren Cordain and MS explaining this). Again I look back to his old diet pre diagnosis and shake my head at how bad he used to eat. So in our home we have meat fish eggs, some dairy and more meat, veges, fruit, and my bf is really god with eating all of these with me, he still eats some bread tho.
Of course I wish he would quit smoking, as there's lots of studies linking ms is higher in smokers
Anyway (geez this is a long post) this last week only, I think he's had a flare up. His got pain in one leg and he's having trouble walking, and its affecting his work. He works full time, we have a mortgage, so I'm getting worried. He hadn't had a relapse since 2008, and the only symptoms he's had was constant pins and needles in his fingertips, and maybe some fatigue (he never whinges/mentions about anything).
So I'm starting to remember how freaked out I was when he was first diagnosed.. I'm scared how how bad this flare up will be, I'm scared of what it could entail in our future. My biggest fear is one he wont be able to walk.
He doesn't want to go to his neuro, wants to brave it out, and he doubts its even the ms playing up! he's blaming it on work, although he did nothing out of the ordinary. Its winter here too, so could be the change in weather.
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