Anyone Have Unexplained Symptoms as a Child?

[maximumlite]

I had Osteomyelitis which is a bone infection and consider'd an auto immune disease when I was a kid

[Cartoonist2]

It all started with undiagnosed bladder issues when I was 3. They went away on it's own. Later on, I couldn't run without falling. I had pain in my legs a lot as a kid, which the doc indicated as growing pains. I had memory issues and I was a klutz too. It was determined to all be my own fault, lol. Everything always went away by itself, but something always didn't heal 100%.

I talked it over with my new Neuro and he agrees that MS started when I was 3. I have PRMS and that made it harder to diagnose, as specialists have a hard time diagnosing MS, having a more seldom type makes it even harder. It took 39 years after the first symptoms to get diagnosed, that was 15 years after the first very obvious symptoms.

[hparks]

Might be able to help researchers out!

Even though it was 20 years ago (yes, before computers), I may have found the doctor and medical records from my "Unexplained Symptoms as a Child"! I'm hoping that even if it doesn't help me personally, it can be used to help others.

[Ryluria]

My parents rarely took me to the doctors because we were so poor, but I remember I was around 8 the first time I got these pains in my abdomen that felt like someone was stabbing me in the belly button. I still get them from time to time. I have no idea if its related to MS or not, but I have a phobia of people touching my belly button now. My husband will try to do it just to make me mad

Otherwise the only thing I can remember is being a lazy teenager. I mean, really, really lazy. Wouldn't get out of bed until noon and refused to get up for school most of the time. I ended up dropping out and getting my GED. I'm smart enough, I just couldn't get myself up to go to school.

[asiel1]

Yes. I remember an episode in 9th grade. I lost all sense of balance and my vision was very blurry. I was at school and unsure of what was wrong. I was able to make it to class and by the end of the day it was gone. It was very frightening, and as a child with no insurance there was really nothing that could be done.

I never said anything to my Mom, I knew it would make her worry. I just went on about my business. I think of it often and wonder if it is related.

LBJ

[hope32]

Interesting! I don't remember having anything unusual as a kid. I sprained and fractured my wrist at gymnastics at age 6 and had surgery for a dorsal ganglion on the same wrist at 14 but was otherwise pretty healthy. I did start to have urinary urgency and frequency when I was around 18. That gets treated like an MS symptom now but it's hard to tell if it was the MS that caused it or something else. (I didn't have my first recognized MS attack till I was 24.)

[tiffdulla]

interesting thread. the only thing i can remember is constantly having sinus infections and headaches. i remember have small but noticeable muscle twitches, and being very forgetful with tasks. idk if its at all related, but it makes me have an extra careful eye on my daughter. i wish their was some definitive way of knowing even the smallest sign.

[dpmich]

I was also a clumsy kid (still am I guess). I could not run extended distances, anything over 100 yards was out. Never could do pull ups, rope climbing, chin ups ets. Even though I was a very slender teenager.

The earliest wierd thing I can remember is the time when I had 'bugs' crawling on my legs. I even woke my Dad up by my crying about it. I think I was 13 or so. He came in several times, stripped the bed eventually, even sprayed insect spray before we remade it. My legs itched and had the creepy crawlies so bad. The same feelings I have now for my RLS or MS, whichever it is.

Debbie

[sunshine008]

hi

interesting thread......

yes i used to get as a young child and still do pnuemonnia each year. my lungs just always seemed to be so sensitive. a big MS thing i've heard.

I"d also have spasms at night w/my legs as a kid from time to time. They twitch all over the bed at night and it would stop me from sleeping well or falling asleep well.

into my later teens i had horrible migraines and into my early twenties so bad i had to go on medication for it. Yet no one ever thought to get an MRI of my brain done.

I had twisted my ankle several times. attributed it to being clumsy.

I had memory issues that started in my early twenties, really bad. again didn't think anything of it, just thought maybe stress related.

i also had swollen legs at times, particulary my ankles and feet. my feet would go numb sometimes yet i'd assume it was due to tight shoes. my feet would get terrible cramps i think i made up an excuse for that one as well. it's why i stopped swimming in deep water. i used to head to the beach and swim all the way out.

i'd also get swollen fingers at times, especially in summer and winter. again ignored it.

iv'e probably had it since a kid. my daughter's going into my neuro soon bc i think she may have it. she has terrible bouts of fatigue always looks exhausted, etc.

interesting thread again

so now at 41 i finally said ok i have MS. i knew it before i went to neuro and confirmed with mri.

[rickalex2]

When I was 8, I went with my brothers and sister for ice cream and we had to walk a couple blocks. It was a sunny day and the heat got to me. I could barely walk back to a family party we had been at. My brothers and sister were angry with me because I'd have to stop and rest all the time. When we got to the party there was no where to sit so I just sat on the floor in the corner. My Dad found me and picked me up. I was like a wet rag. They took me home and did whatever they could to cool my body down. I look back at that and think about how I feel now on hot, humid days and how bad I get. And that was when I was 8!