I am set to see my neuro next month to start a DMT. This will be my first DMT. I've had brain lesions for a while now but recently I had a flare and, hence, another MRI and now I have a cervical lesion (C7) and a small lesion on my thorasics (T5).
I did all the research and had decided on Mavenclad and this was also suggested by my neuro. I am 51 so my neuro's thinking is that this is 2 years and then done and that should get me to my 60s where my immune system should wane a bit and help with no additional inflammatory lesions.
However, I am in ONTARIO, Canada, and don't have pharma insurance. This means I have to go on the Trillium Drug Benefit (provincially funded drug plan). In order to do this and get an MS DMT you have to also have your neuro apply for Exceptional Access to those drugs. It appears that I might not meet the criteria for the government to pay for Mavenclad (because I have not "failed" on a list of other DMTs). So now we are looking at Kesimpta. I've read about Ocrevus but I have some qualms with what I am reading.
Given the choice, what would you choose? Or, would you choose an entirely different DMT all together? I like the idea of home administration of the DMT. I also like that the list of side-effects seems less with both Mavenclad and Kesimpta.
This is a lot to take in. It's a lot of information. I am looking for any, and all, guidance on this issue.
Also, if you know ANYTHING about the Ontario Trillium Drug Plan I welcome your insight. Also, if you know about the Exceptional Access Program I would love to hear about your experience with this, as well. It feels like the government hoops are harder to navigate than the actual taking of the DMT. Leave it to the government to make an already stressful time even worse.
I did all the research and had decided on Mavenclad and this was also suggested by my neuro. I am 51 so my neuro's thinking is that this is 2 years and then done and that should get me to my 60s where my immune system should wane a bit and help with no additional inflammatory lesions.
However, I am in ONTARIO, Canada, and don't have pharma insurance. This means I have to go on the Trillium Drug Benefit (provincially funded drug plan). In order to do this and get an MS DMT you have to also have your neuro apply for Exceptional Access to those drugs. It appears that I might not meet the criteria for the government to pay for Mavenclad (because I have not "failed" on a list of other DMTs). So now we are looking at Kesimpta. I've read about Ocrevus but I have some qualms with what I am reading.
Given the choice, what would you choose? Or, would you choose an entirely different DMT all together? I like the idea of home administration of the DMT. I also like that the list of side-effects seems less with both Mavenclad and Kesimpta.
This is a lot to take in. It's a lot of information. I am looking for any, and all, guidance on this issue.
Also, if you know ANYTHING about the Ontario Trillium Drug Plan I welcome your insight. Also, if you know about the Exceptional Access Program I would love to hear about your experience with this, as well. It feels like the government hoops are harder to navigate than the actual taking of the DMT. Leave it to the government to make an already stressful time even worse.
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