Happy Fourth, All!
I just turned 55 this year, and switched from Avonex (my long-time companion for 25 years) to Aubagio. I went on SSDI at age 45, and although my MRI's are stable, I have acquired many black holes and lesions having been dx at age 25 (started Avonex at age 28 to age 55).
I have been told I'm secondary progressive"ish" LOL. I can mostly maintain independent living, yet my fatigue and cog fog is getting worse and my bladder and bowels are starting to join the party too. HAHAHA
My only sibling (brother has requested that "I leave him alone" as I found out he has been talking with my next-door neighbor and my only real friend behind my back for several months. This has resulted in both my neighbor and friend to request (in writing) that I stop all communications.
To which I agreed, in writing, but had an "informal cease and desist request" to my neighbor whose sump pump has been flooding my yard and basement for many years. I didn't realize that "all that water in his yard" was from a sump pump as I am a downward slope neighbor. But, I put in writing my request for him to pump into the street and not his yard? It's only been two weeks, but I don't know what else to do?
Anyway, I live alone in my family home that my brother signed his 50% over to me in 2012. I cannot keep up this home and I feel me slowly slipping. I have low vision and have "lost my glasses" a million times just this past month even though I keep everything in the same place. Ugh!
I'm writing to my fellow MSers to please help me navigate what steps I should be taking to look into "selling this house" and moving into an independent or assisted living space. I still look so good, but heck, I think it may be time to go. Maybe spending the next twenty years alone, depressed and elsewhere. The isolation and lack of support is heartbreaking.
I worked as long as I could. I am in Pennsylvania and an Specific Low Income Medicare Beneficiary. I don't get much assistance, and have no idea where to start? So, I'm starting with my MS World. What tips and or advice can you provide.
Thank you, as always!
I just turned 55 this year, and switched from Avonex (my long-time companion for 25 years) to Aubagio. I went on SSDI at age 45, and although my MRI's are stable, I have acquired many black holes and lesions having been dx at age 25 (started Avonex at age 28 to age 55).
I have been told I'm secondary progressive"ish" LOL. I can mostly maintain independent living, yet my fatigue and cog fog is getting worse and my bladder and bowels are starting to join the party too. HAHAHA
My only sibling (brother has requested that "I leave him alone" as I found out he has been talking with my next-door neighbor and my only real friend behind my back for several months. This has resulted in both my neighbor and friend to request (in writing) that I stop all communications.
To which I agreed, in writing, but had an "informal cease and desist request" to my neighbor whose sump pump has been flooding my yard and basement for many years. I didn't realize that "all that water in his yard" was from a sump pump as I am a downward slope neighbor. But, I put in writing my request for him to pump into the street and not his yard? It's only been two weeks, but I don't know what else to do?
Anyway, I live alone in my family home that my brother signed his 50% over to me in 2012. I cannot keep up this home and I feel me slowly slipping. I have low vision and have "lost my glasses" a million times just this past month even though I keep everything in the same place. Ugh!
I'm writing to my fellow MSers to please help me navigate what steps I should be taking to look into "selling this house" and moving into an independent or assisted living space. I still look so good, but heck, I think it may be time to go. Maybe spending the next twenty years alone, depressed and elsewhere. The isolation and lack of support is heartbreaking.
I worked as long as I could. I am in Pennsylvania and an Specific Low Income Medicare Beneficiary. I don't get much assistance, and have no idea where to start? So, I'm starting with my MS World. What tips and or advice can you provide.
Thank you, as always!
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