May 1st marked 17 years since my Dx... I can't believe how far I have come!

[sara2005]

May 1st, 2022, marked 17 years since the last time I lived a normal life.

On May 1st, 2005,I was admitted to the hospital with severe back pain. I was diagnosed with ADEM but suffered a complication called “Locked In Syndrome.” Within weeks I became completely paralyzed only being able to blink.

I’ve kept most of the things that I went through to myself because I don’t really like talking about my life to anyone and it’s really hard to revisit those memories, however, with the push of my family I finally decided that I should get my story out there in hopes of helping others get through there hardships and that there is a light at the end of the tunnel.

I’ve created an intro video and released it on my Tiktok and hopefully, in a few weeks, will start releasing short video clips of my story in chronological order of some of the obstacles I went through and how I recovered so much despite the severe damage that occurred in my Central Nervous System and the poor prognosis the specialists had given me.

If my story even just helps one person then all of this was well worth it.

[sara2005]

Go to my profile for my Social Media info.

[Seasha]

Welcome sara2005!

I watched your video and am saddened by all you have gone through. Did you get a confirmed DX of MS 17 years ago or was it something else? You can tell more about your story here on the message boards too. I'm sure it will help others. We, in turn, are here to help you in any way possible.

Please take care!

[sara2005]

Welcome sara2005!

I watched your video and am saddened by all you have gone through. Did you get a confirmed DX of MS 17 years ago or was it something else? You can tell more about your story here on the message boards too. I'm sure it will help others. We, in turn, are here to help you in any way possible.

Please take care!

Sharing through TikTok, making short video clips, is much easier for me then typing because I get headaches real quick lol I have both Nystagmus and double vision so I have to concentrate harder when looking at the screen. At first I was diagnosed with Transverse Myelitis but then I had a relapse and the inflammation hit my brain. They thought it was MS however after an MRI they Dx'd me with ADEM. Initially, I had shingles which I'm sure ADEM was a complication from that, then another complication from ADEM resulting in "Locked In Syndrome." I've been told to play lotto. lol

[Mamabug]

Thanks for sharing the beginning of your story. I, too, have had MS for a long time. I'm at 20 years.

[sara2005]

Thanks for sharing the beginning of your story. I, too, have had MS for a long time. I'm at 20 years.

My pleasure! We're all survivors!

[KoKo]

Hey sara2005!

Welcome!

Looking forward to learning more about your courageous journey.