I saw the neurologist today. He officially diagnosed me. It's been a long 2 years, let me tell you! He said he thinks I have had MS since 2013 when I had my CIS of ON. Apparently he got on the phone with my ophthalmologist and my infectious disease doctor (treated me for Lyme) and had a discussion between all of them. They all concur that it's probably being going on since 2013. Between the two MRIs and the LP it all adds up to MS.
The good news is that the neuro thinks it's a mild case. He did confirm, however, that I do have some spasticity in my right quad muscle. It has been tight and making me limp. I didn't even mention it to him but he found it upon exam and them watching me walk. It's been bugging me for a while, now. He also said the headaches I have been getting are likely related.
For now we are ruling out DMTs. He thinks my condition does not warrant the risk. We will stay on top of it and reassess. He is setting up another MRI in October - that will be my 3rd in 3 years.
The good thing is my age. I am 50 years old. He said this is good as our immune systems become less active with age. In his words, "Let's try to get you to age 60 in the same shape you are now and I think you'll be good".
At least now I know for sure.
The good news is that the neuro thinks it's a mild case. He did confirm, however, that I do have some spasticity in my right quad muscle. It has been tight and making me limp. I didn't even mention it to him but he found it upon exam and them watching me walk. It's been bugging me for a while, now. He also said the headaches I have been getting are likely related.
For now we are ruling out DMTs. He thinks my condition does not warrant the risk. We will stay on top of it and reassess. He is setting up another MRI in October - that will be my 3rd in 3 years.
The good thing is my age. I am 50 years old. He said this is good as our immune systems become less active with age. In his words, "Let's try to get you to age 60 in the same shape you are now and I think you'll be good".
At least now I know for sure.
Comment