I went off Copaxone about ten years ago. I have been doing very well and the last neuro I had thought things had reached a kind of "burn out". I went thru a lot of stress when my husband was sick and dying. But since then I've been much better. I started having widespread pain about 3 weeks ago. Finally went to my primary and she suggested that this could be a relapse and offered steroids. I turned that down for now. I don't have a neuro right now. Mine retired a couple years ago and I have felt so much better that I just didn't look for a new one. My primary offered to get me in with a new neuro, but I declined for now because of transportation issues. Driving is not my best talent. Still get off balance and don't concentrate very well in that activity.
Anyway, I wonder if anyone could give me a picture of your relapses... signs, symptoms, things like that. For years I had some fuzzy "relapses" where the neuro was never sure if they actually were relapses or just progression. But I'm actually pretty good. My mri's are usually the same old stuff. Nothing new. The last one was a few years ago.
I'm not here to whine about pain or odd stuff. Just want some guidelines. We are going to do a round of Physical Therapy first. This worked for me a few years ago. I am not on any MS meds. Once in awhile a little Baclofen.
I was actually kind of surprised that my doctor's first thought was ... Relapse. I never thought of that. I am totally exhausted every day of my life and still have some dizziness, but not as much as before. I'm walking well, but can't do the straight line test. I guess you call it some kind of balance test.
Thanks if you can help me. I just have to get my head around this before I make any decisions.
Anyway, I wonder if anyone could give me a picture of your relapses... signs, symptoms, things like that. For years I had some fuzzy "relapses" where the neuro was never sure if they actually were relapses or just progression. But I'm actually pretty good. My mri's are usually the same old stuff. Nothing new. The last one was a few years ago.
I'm not here to whine about pain or odd stuff. Just want some guidelines. We are going to do a round of Physical Therapy first. This worked for me a few years ago. I am not on any MS meds. Once in awhile a little Baclofen.
I was actually kind of surprised that my doctor's first thought was ... Relapse. I never thought of that. I am totally exhausted every day of my life and still have some dizziness, but not as much as before. I'm walking well, but can't do the straight line test. I guess you call it some kind of balance test.
Thanks if you can help me. I just have to get my head around this before I make any decisions.
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