Hello, This is a little off topic yet the possibly on point for some in our community. My friend is getting a permanent urostomy (like a colostomy, but for urine) on Wednesday. He is getting it due to side effects of cancer treatment, not MS.
I have been scouring resources to get a 1:1 conversation for him before his surgery so he can go in feeling somewhat positive. I have contacted the ostomy.org, UUAA, USTOO, PCRI, and several other online support sites and called their numbers - none of the advertised support lines I've found actually are staffed by a volunteer who speaks to people.
I could direct him to the National MS Society hotline I suppose, but it seems like a drain on their resources and he doesn't have MS. I am just wondering if anyone on this board knows of a support line that is staffed with volunteers and can discuss Urostomy surgery/expectations/quality of life.
thank you and back to regularly scheduled programming...
I have been scouring resources to get a 1:1 conversation for him before his surgery so he can go in feeling somewhat positive. I have contacted the ostomy.org, UUAA, USTOO, PCRI, and several other online support sites and called their numbers - none of the advertised support lines I've found actually are staffed by a volunteer who speaks to people.
I could direct him to the National MS Society hotline I suppose, but it seems like a drain on their resources and he doesn't have MS. I am just wondering if anyone on this board knows of a support line that is staffed with volunteers and can discuss Urostomy surgery/expectations/quality of life.
thank you and back to regularly scheduled programming...
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