My son is thirty-five and is finally making the plunge. He has a good solid career and has been going with a wonderful girl for quite a few years. She graduated from a professional program so she will have a career. He is getting the ring, they are deciding on the China and all the excitement is beginning.
I feel the excitement but this is a time my MS is causing me the most pain. I’m not talking about the pain that we take Lyrica and gabapentin for. I mean the pain in my heart. I would love to be having a formal meeting with her parents, planning the rehearsal dinner and walk down the aisle with my son.
They have not set a date or a venue yet but it is likely going to be in Southern California. I don’t live there any more so it would be a very tiring journey. I can never do things without a day to rest in between no matter how much I force myself. If there is a rehearsal dinner the night before, I’m sunk. Traditionally, it was the brides family that planned the wedding but it seems couples have been more often planning it themselves.
In Southern California everything is very spread out. I would have to stay in a hotel because no one has space for an extra person and rent a car. I haven’t driven for five years and am terrified of driving in LA. That means someone would have to take me. I have thought of bringing the guy who cares for me now. My son would take care of me but his wedding day is likely to be hectic.
I’m trying to figure out what role I can play given that I have advanced MS. That means just near end-stage. Putting on a beautiful rehearsal dinner would give me so much joy but that will not be possible. Walking down the aisle...maybe. Going to the reception, being in the pictures I don’t know. This is a time when I wish I had money to offer but I don’t.
I have a good relationship with my son and his girlfriend and I get along really well. So I know that is what is important in the end. It’s just for this special day I want to be the mother my son has always wanted me to be.
Does anyone have any creative ideas about ways to help make it wonderful for them? Does anyone have any suggestions about ways to be a disabled mother of the groom? I wish I could come back to life for just one day but I get about three hours of waking time and then start to fade and need to lie down and sleep for six hours.
I feel the excitement but this is a time my MS is causing me the most pain. I’m not talking about the pain that we take Lyrica and gabapentin for. I mean the pain in my heart. I would love to be having a formal meeting with her parents, planning the rehearsal dinner and walk down the aisle with my son.
They have not set a date or a venue yet but it is likely going to be in Southern California. I don’t live there any more so it would be a very tiring journey. I can never do things without a day to rest in between no matter how much I force myself. If there is a rehearsal dinner the night before, I’m sunk. Traditionally, it was the brides family that planned the wedding but it seems couples have been more often planning it themselves.
In Southern California everything is very spread out. I would have to stay in a hotel because no one has space for an extra person and rent a car. I haven’t driven for five years and am terrified of driving in LA. That means someone would have to take me. I have thought of bringing the guy who cares for me now. My son would take care of me but his wedding day is likely to be hectic.
I’m trying to figure out what role I can play given that I have advanced MS. That means just near end-stage. Putting on a beautiful rehearsal dinner would give me so much joy but that will not be possible. Walking down the aisle...maybe. Going to the reception, being in the pictures I don’t know. This is a time when I wish I had money to offer but I don’t.
I have a good relationship with my son and his girlfriend and I get along really well. So I know that is what is important in the end. It’s just for this special day I want to be the mother my son has always wanted me to be.
Does anyone have any creative ideas about ways to help make it wonderful for them? Does anyone have any suggestions about ways to be a disabled mother of the groom? I wish I could come back to life for just one day but I get about three hours of waking time and then start to fade and need to lie down and sleep for six hours.
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