Originally posted by Mamabug
View Post
Announcement
Collapse
No announcement yet.
A Few Questions
Collapse
X
-
Originally posted by uazip0510 View PostThank you, I've seen some variant age ranges used on different websites so I wasn't sure. Even "20's and 30's" is vague but I guess you'll have that with this disease.
I noticed that this link addresses date of dx, rather than date of onset. Althogh most people are dx in their 20's and 30's, some people with MS are diagnosed outside of this age range.
Although my first MS flare occurred three months before my 40th birthday, it took almost two years for me to be diagnosed. I was 41 when dx.Last edited by Mamabug; 11-29-2019, 09:58 AM.~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
Comment
-
Originally posted by uazip0510 View PostThank you, I've seen some variant age ranges used on different websites so I wasn't sure. Even "20's and 30's" is vague but I guess you'll have that with this disease.
So even though diagnosed late, was still RRMS.
So averages are just that. With any statistic, there is variability. I would wait until you get testing done before assuming it is MS. It does seem like you have multiple things going on. As hard as it is to wait, when we Google things, we can cause ourselves a lot of anxiety, which in turn can cause problems.Kathy
DX 01/06, currently on Tysabri
Comment
-
Originally posted by uazip0510 View Post2) How do doctors decide what form of MS you have?
1.One year of disease progression (worsening of neurological function without remission), AND
2.Two of the following:
*A type of lesion in the brain that is recognized by experts in as being typical of MS
*Two or more lesions of a similar type in the spinal cord
*Evidence in the spinal fluid of oligoclonal band or an elevated IgG index, both of which are indicative of immune system activity in the central nervous system
https://www.nationalmssociety.org/Wh...Progressive-MS
Hope this helps.
Take CarePPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
Comment
-
Originally posted by uazip0510 View PostCan you have a normal brain MRI and have MS or is it unlikely at this point?
"A normal MRI does not absolutely rule out MS. About 5% of people, who are confirmed to have MS on the basis of other criteria, do not show any lesions in the brain on MRI. These people may have lesions in the spinal cord or may have lesions that cannot be detected by MRI. A clear-cut diagnosis might be made based on an evaluation of symptoms, signs, and the results of an MRI, but additional tests may be ordered as well. These include tests of evoked potential, cerebrospinal fluid, and blood"
This may be helpful for you as you navigate though the diagnostic process - https://www.nationalmssociety.org/Na...asic-Facts.pdf
Take care!1st sx '89 Dx '99 w/RRMS - SP since 2010
Administrator Message Boards/Moderator
Comment
-
Originally posted by uazip0510 View PostI haven't heard from my Dr yet but the results posted online and it says everything was normal. Can you have a normal brain MRI and have MS or is it unlikely at this point?
I would, again, suggest you see an Orthopedist as that very well could give you some answers to, at least, some of the joint issues/pain.Diagnosed 1984
“Lightworkers aren’t here to avoid the darkness…they are here to transform the darkness through the illuminating power of love.” Muses from a mystic
Comment
-
Originally posted by Seasha View PostYes, it's possible but further testing should be done and other criteria determined.
"A normal MRI does not absolutely rule out MS. About 5% of people, who are confirmed to have MS on the basis of other criteria, do not show any lesions in the brain on MRI. These people may have lesions in the spinal cord or may have lesions that cannot be detected by MRI. A clear-cut diagnosis might be made based on an evaluation of symptoms, signs, and the results of an MRI, but additional tests may be ordered as well. These include tests of evoked potential, cerebrospinal fluid, and blood"
This may be helpful for you as you navigate though the diagnostic process - https://www.nationalmssociety.org/Na...asic-Facts.pdf
Take care!
Comment
-
Part of the reason my diagnosis took so long (40 years) was because all of my tests were negative. The brain lesions didn't show up until sometime over the last 4 years, and I still have no spinal lesions.
Don't let my experience discourage you! i didn't push hard enough over the years for a diagnosis or extended testing.
Comment
-
Originally posted by Seasha View PostA clear-cut diagnosis might be made based on an evaluation of symptoms, signs, and the results of an MRI, but additional tests may be ordered as well. These include tests of evoked potential, cerebrospinal fluid, and blood"Originally posted by uazip0510 View PostI haven't heard from my Dr yet but the results posted online and it says everything was normal. Can you have a normal brain MRI and have MS or is it unlikely at this point?
Maybe your neuro saw signs of neurological deficits in your clinical neurological exam, but if that's the case, you haven't shared what objective signs that your neuro found?
Take CarePPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
Comment
-
Originally posted by KoKo View PostFrom what you have shared in your posts, I haven't really seen any overwhelming neurological signs or symptoms that are typical of MS.
Maybe your neuro saw signs of neurological deficits in your clinical neurological exam, but if that's the case, you haven't shared what objective signs that your neuro found?
Take Care
- Burning sensation felt on both outer ears
- Middle back pain (I can feel the exact spot where the pain is)
- Bilateral pain and tingling in feet
- Bitlateral tightness in calves/knees
Comment
-
Originally posted by uazip0510 View PostNot sure what specifically he ordered the test based on but I went to him with these symptoms:
- Burning sensation felt on both outer ears
- Middle back pain (I can feel the exact spot where the pain is)
- Bilateral pain and tingling in feet
- Bitlateral tightness in calves/knees
Take CarePPMS for 26 years (dx 1998)
~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~
Comment
Comment