Not trying to bring politics in here. Just wondering if we should be concerned about our insurance and our pre existing conditions yet??
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Originally posted by marti View PostNot trying to bring politics in here. Just wondering if we should be concerned about our insurance and our pre existing conditions yet??~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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Dear Marti,
I certainly am concerned. I am on Medicare, but spend a lot of money on supplemental insurance and Plan D drug coverage. Coverage for pre-existing conditions is essential for me: MS, cancer, asthma, and on and on. But I don't know what I can do to prevent even this expensive scheme from collapsing. I try not to become too anxious.
I have had to turn to less effective, compounded versions of my MS symptomatic medicines because of cost. With Medicare Plan D, special medicines seem to get a classification tier with a high copay. I would like to try the new (and first) SPMS DMT, Mayvent, but I fear no Plan D will cover enough of the cost.
Thank you for posting.
Stay lifted,
Mermaid Susan"Life is short, and we have but little time to gladden the hearts of those who travel with us; so let us be swift to love, and make haste to be kind." -Henri Amiel
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Take Civic Action
Originally posted by Mamabug View PostI try not to be concerned for myself personally. My insurance coverage is through my husband's employer, and they offered some of the benefits of ACA long before ACA was in effect. I am, however, concerned for others. IMO, health insurance should be affordable and attainable for everyone.
But the ACA includes patient protections for everyone with health insurance. https://www.healthcare.gov/health-ca...d-protections/
A few highlights:
- Health insurance must be available to everyone.
- Insurance companies can’t charge discriminatory premiums to people with health issues.
- Insurance companies can't cap the amount of coverage available to insured.
Individual Mandate Repeal
"Obamacare" also mandated everyone to have health insurance, providing a way to keep medical costs down for everyone.
In 2016 that trend was permanently broken with the repeal of the individual mandate. This also legally set the stage for total repeal of ACA patient protections.
In 2015 under the ACA, health care spending grew at the slowest rate since 1960
https://obamacarefacts.com/2017/07/1...medical-costs/
If you do review the above URL, note that the White House has removed the page illustrating the positive impact on health costs under the ACA as of 2015. https://www.whitehouse.gov/sites/def...embargo_v2.pdf
Anyway, Congress has narrowly rejected an ACA repeal twice. So at the request of the White House, the decision is again with the DOJ. It will likely end up in the Supreme Court for a third time, where the ACA has been backed in two previous cases under different justices.
If you support the ACA and patient protections:
Contact your elected officials - your feedback makes a difference
Tell staff who answer that you support the ACA patient protections, and that you will remember what Congressman or Senator X is doing to support it, should they run for office again. Their staff will note your feedback.
Contact numbers for your reps:
https://www.usa.gov/elected-officials
Write a letter or call the Department of Justice (why not?)
U.S. Department of Justice
950 Pennsylvania Avenue, NW
Washington, DC 20530-0001
The Department may be contacted by phone at the following:
* Department Comment Line: 202-353-1555
* Department of Justice Main Switchboard: 202-514-2000
* TTY/ASCII/TDD: 800-877-8339 (or Federal IP Relay Service)All the best, ~G
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Originally posted by Seasha View PostThank you gargantua for doing this homework for us Now we can and should write or call!
Here is a statement made jointly with the National MS Society in the US, after the ACA was overturned in a lower court in December 2018.
https://www.nationalmssociety.org/Ab...trict-Court-Ru
Never let anyone tell you the ACA is a disaster. It has only been made so through the recent dismantling of its key cost-saving components.
https://www.dailykos.com/stories/201...iple-SclerosisAll the best, ~G
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Originally posted by its2much View PostIt is extremely difficult for me to put anything in writing due to my cognitive issues. Where can one find a sample letter to send to our representatives regarding this?
Thanks!
You can probably use the information, Its2much, to put together a letter if you prefer that.
https://5calls.org/more/~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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Here's an idea- https://www.writeexpress.com/How-to-...-Congress.html
I usually get something from the NMSS with a pre-formed email to sign, but according to the above article, it's more effective to write a letter and not use the standard form -
"3. Make your letter personal.
Keep your letter unique; don’t just copy a form letter and send it. Sending one hundred (or even one million) copies of the same letter is not an effective way to communicate the real concerns of real people."
JMO - either way is good or call. Most importantly, it's up to us to communicate and make our voices/concerns known.1st sx '89 Dx '99 w/RRMS - SP since 2010
Administrator Message Boards/Moderator
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Originally posted by its2much View PostIt is extremely difficult for me to put anything in writing due to my cognitive issues. Where can one find a sample letter to send to our representatives regarding this?
Thanks!
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Dear NAME OF YOUR REPRESENTATIVE,
As your constituent, I thank you for your service on my behalf.
I support the ACA and all of the patient protections it provides.
- All Americans must have access to good health insurance
- Good healthcare should affordable for all Americans
- Insurance coverage will not be capped for any American
NAME OF YOUR REPRESENTATIVE, I and other Americans are watching your actions on this issue, should you run for office again. Please preserve all of our patient protections under the ACA.
Thank you,
YOUR NAMEAll the best, ~G
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Originally posted by Seasha View Post
... it's more effective to write a letter and not use the standard form -
"3. Make your letter personal.
Keep your letter unique; don’t just copy a form letter and send it. Sending one hundred (or even one million) copies of the same letter is not an effective way to communicate the real concerns of real people."
JMO - either way is good or call. Most importantly, it's up to us to communicate and make our voices/concerns known.
I often start with a question on where my house member or senator stands on the issue (even if I think I know the answer). I follow that with my perspective, often drawing heavily from the 5calls website, and I add something personal about why this issue is important to me.~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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Wow! I am so glad I asked this question. I hesitated at first.
Do our calls and letters actually make a difference and get to the right people who can help? I've always had so many doubts about adding my voice.
Thank you ALL for the wonderful suggestions and answers!! Well worth asking my stupid question!!Marti
The only cure for insomnia is to get more sleep.
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Thanks Marti!
It's true that personal messages are meaningful, but if it's a trade off between taking the time to write something personal and making the gesture, make the gesture by all means.
Most effective: Mail to the rep's Washington DC Office
Next-most effective: Phone calls to the rep's Washington DC OfficeAll the best, ~G
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Originally posted by gargantua View PostMost effective: Mail to the rep's Washington DC Office
Next-most effective: Phone calls to the rep's Washington DC Office
- Most effective:
"Calling members of Congress is the most effective way to have your voice heard. Calls are tallied by staffers and the count is given to your representatives, informing them how strongly their constituents feel about a current issue. The sooner you reach out, the more likely it is that your voice will influence their position."
"Can't I send an email / fax / letter / postcard instead? Nope. Phone calls are tallied right away, so they have by far the most immediate impact. Faxes these days are typically rendered digitally via email. Emails and postal mail must be read, batched by issue and THEN tallied. Physical letters and postcards – yes, postcards too – may also be quarantined for safety inspections. (And if you think all that happens quickly, it …doesn’t.)"
- Washington office vs state office:
"Consider calling the local office.
Calling the office in your district or state, rather than the Washington office, can sometimes be very effective. If you are calling about a vote or other timely issues, always call the Washington office.
But, if you are calling generally about an issue that affects your district or community, calling the local office can be a good way to make them aware of an issue."~ Faith
MSWorld Volunteer -- Moderator since JUN2012
(now a Mimibug)
Symptoms began in JAN02
- Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
- In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08.
- Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
- Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.
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Originally posted by Mamabug View PostI've read something different. But, if an issue is important to you, do something. Something is better than nothing.
- Most effective:
"Calling members of Congress is the most effective way to have your voice heard. Calls are tallied by staffers and the count is given to your representatives, informing them how strongly their constituents feel about a current issue. The sooner you reach out, the more likely it is that your voice will influence their position."
"Can't I send an email / fax / letter / postcard instead? Nope. Phone calls are tallied right away, so they have by far the most immediate impact. Faxes these days are typically rendered digitally via email. Emails and postal mail must be read, batched by issue and THEN tallied. Physical letters and postcards – yes, postcards too – may also be quarantined for safety inspections. (And if you think all that happens quickly, it …doesn’t.)"
- Washington office vs state office:
"Consider calling the local office.
Calling the office in your district or state, rather than the Washington office, can sometimes be very effective. If you are calling about a vote or other timely issues, always call the Washington office.
But, if you are calling generally about an issue that affects your district or community, calling the local office can be a good way to make them aware of an issue."
On this issue they aren't voting, so they will be getting a lot of longer personal communication in their local offices. Let's go for it!
If enough people are unhappy about something, the rep will act accordingly in order to keep their job!
2019 News/Analysis
I have been looking for analysis to help us feel better this week. Finally CNN (not everyone's favorite resource) came through. It is interesting to see that even Blue Shield's main government liaison thinks the ACA is pretty decent.
**URL removed by Moderator in compliance with MSWorld Guidelines. This may be put in your Profile for all registered, logged-in members to see. Go to your Username on black bar running across top of page > My Settings > Edit Profile**All the best, ~G
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