I got the diagnosis in 2006 after a few years in limbo. The diagnosis didn't change my life drastically - work, family, hobbies continued. I was 34 or so when I first noticed symptoms, but chalked them up to working. I first saw a neuro when I was 40, so I think the life planning was going to change anyway by the time I got the diagnosis. We learn that if this doesn't happen, that will. So we tend to be even more cautious with our money, planning for things to not be exactly as we plan -if that makes sense -for example.
To date I don't have physical disability, but I do have cog fog more often, especially if I'm fatigued. That is why I left work. So, I think because I didn't have physical disability, the day-to-day didn't change much. Long term planning maybe changed a little earlier than for most people without MS? Maybe? But I would guess that most people by about 40 would start to think about life things less like a younger adult, anyway.
The psychological was the most difficult thing. That needed to change after getting the diagnosis, but it took time. I honestly didn't believe it unless I was experiencing symptoms, and didn't tell people for the longest time because it felt like a lie. People here said that I was lucky if I could still doubt it. True!!!
What about you? What was your experience right after diagnosis?
To date I don't have physical disability, but I do have cog fog more often, especially if I'm fatigued. That is why I left work. So, I think because I didn't have physical disability, the day-to-day didn't change much. Long term planning maybe changed a little earlier than for most people without MS? Maybe? But I would guess that most people by about 40 would start to think about life things less like a younger adult, anyway.
The psychological was the most difficult thing. That needed to change after getting the diagnosis, but it took time. I honestly didn't believe it unless I was experiencing symptoms, and didn't tell people for the longest time because it felt like a lie. People here said that I was lucky if I could still doubt it. True!!!
What about you? What was your experience right after diagnosis?
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