Hello friends!
Well,l here is an update: I continue to have stomach pain but the pain has gotten less and my left leg is slowly, very slowly getting stronger. That said, I am stuck with severe constipation...so much so I ended up in the ER last week via ambulance. Let me just day it was bad and humiliating.
I am taking Mag Citrate, colace, Metamucil, Miralax and still have been unable to pass stools except with the bad incident last week. Yesterday I added Linzess and yup, the dose must be too small as I only passed a small amount. Today....well nothing yet. I have read horror stories on the drug online and frankly I am quite scared as I am really a “no-med” kind of girl.
After leaving my job/career due to MS and these other health issues, the feeling of isolation (not feeling well enough to do things), my fears about meds and outcomes, and really the many layers of autoimmune diseases, I am really struggling right now. It feels like a very dark time for me although I know intellectually I shouldn’t feel that way. I have so many blessings: a supportive husband and family, I can financially afford not to work for a while, my teen daughters are both doing well in relationships, self image, school/grades, etc. But yet, I feel so alone and very scared. Taking the Linzess (after reading about it online) has made me even more afraid and anxious. Next week I hope to have some answers as my gastro is doing some testing.
I see my psyc doc today and plan on attending a chronic illness support group tonight. I am hoping this support group will be helpful as my friends are busy with their own lives and really don’t understand MS and how it affects me physically and mentally...probably because I look so good! 😉
Thank you for letting me come here and vent and share my fears. I wish I could understand why I have been so constipated for over 6 months now....and I remain hopeful that it will be nothing too bad. Thanks everyone for listening...I am most grateful! 💕
Well,l here is an update: I continue to have stomach pain but the pain has gotten less and my left leg is slowly, very slowly getting stronger. That said, I am stuck with severe constipation...so much so I ended up in the ER last week via ambulance. Let me just day it was bad and humiliating.
I am taking Mag Citrate, colace, Metamucil, Miralax and still have been unable to pass stools except with the bad incident last week. Yesterday I added Linzess and yup, the dose must be too small as I only passed a small amount. Today....well nothing yet. I have read horror stories on the drug online and frankly I am quite scared as I am really a “no-med” kind of girl.
After leaving my job/career due to MS and these other health issues, the feeling of isolation (not feeling well enough to do things), my fears about meds and outcomes, and really the many layers of autoimmune diseases, I am really struggling right now. It feels like a very dark time for me although I know intellectually I shouldn’t feel that way. I have so many blessings: a supportive husband and family, I can financially afford not to work for a while, my teen daughters are both doing well in relationships, self image, school/grades, etc. But yet, I feel so alone and very scared. Taking the Linzess (after reading about it online) has made me even more afraid and anxious. Next week I hope to have some answers as my gastro is doing some testing.
I see my psyc doc today and plan on attending a chronic illness support group tonight. I am hoping this support group will be helpful as my friends are busy with their own lives and really don’t understand MS and how it affects me physically and mentally...probably because I look so good! 😉
Thank you for letting me come here and vent and share my fears. I wish I could understand why I have been so constipated for over 6 months now....and I remain hopeful that it will be nothing too bad. Thanks everyone for listening...I am most grateful! 💕
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