So, I took a peek at Selma Blair’s Instagram account and for the first 4-5 posts I was touched by both her fans support and her interaction with them. Then, the Lyme Parade showed up.
This may be more of a vent than anything else, but what is it with the “chronic Lyme” community? I swear, I’ve come across hundreds of comments from “Lymies” on MS posts who interject with their woo-woo scientific opinion that all MS is just misdiagnosed chronic Lyme disease.
It’s always the same diatribe. “MS is misdiagnosed Lyme!” “You need to find a Lyme literate doctor!’” “You have to have your blood work sent to a special lab because commercial labs can’t detect Lyme!”
Its so upsetting to read this because not only is chronic Lyme not proven to exist, but these labs and “Lyme literate doctors” cost patients hundreds of thousands of dollars in cash and insurance won’t cover cover it because it’s pseudoscience. I understand that some patients are desperate for answers for their ailments and I get that some fall prey due to desperation, but to try to convince someone with a real, diagnosed disease that they must have Lyme is terrible.
The “treatments” for chronic Lyme aren’t only insanely expensive, but they can be downright dangerous.
On the other side of the “celebrities with chronic diseases” you have people like Yolanda Foster touting this so-called disease and convincing people that she not only has it, but that they do too.
This type of “public service” is so harmful and it’s yet another reason we need to make sure MS is understood by those around us.
This may be more of a vent than anything else, but what is it with the “chronic Lyme” community? I swear, I’ve come across hundreds of comments from “Lymies” on MS posts who interject with their woo-woo scientific opinion that all MS is just misdiagnosed chronic Lyme disease.
It’s always the same diatribe. “MS is misdiagnosed Lyme!” “You need to find a Lyme literate doctor!’” “You have to have your blood work sent to a special lab because commercial labs can’t detect Lyme!”
Its so upsetting to read this because not only is chronic Lyme not proven to exist, but these labs and “Lyme literate doctors” cost patients hundreds of thousands of dollars in cash and insurance won’t cover cover it because it’s pseudoscience. I understand that some patients are desperate for answers for their ailments and I get that some fall prey due to desperation, but to try to convince someone with a real, diagnosed disease that they must have Lyme is terrible.
The “treatments” for chronic Lyme aren’t only insanely expensive, but they can be downright dangerous.
On the other side of the “celebrities with chronic diseases” you have people like Yolanda Foster touting this so-called disease and convincing people that she not only has it, but that they do too.
This type of “public service” is so harmful and it’s yet another reason we need to make sure MS is understood by those around us.
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