1. Is there a chance this could be anything else or CIS. (a second opinion is always a good thing)
2. How bad is drinking with this disease? (I have found some things saying it is helpful and some things saying it is not)
3. Do my two MRIs show any type of improvement? (Again I have read lesions can “heal” and go away)
4. What is your honest opinion of my long term prognosis? (I know this disease varies from person to person but I also know that even when they won’t say it Drs have an opinion on everything) – I know there are many factors that go into this as well, but just a basic opinion is something I need.
5. Could my insomnia be caused by a lesion? ( but then it goes back to that I have had insomnia since I can remember so I doubt I have had this for over 30 something years).
6. Related to question 5 how bad is using XYZ to get a good night’s sleep for this?
7. Is it worth me switching to a different medicine when I am stable on this one and a lot of the newer ones cause immune suppression? There is a Dr at one of the other locations that is having health issues where she has immune suppression and she is basically very limited in what they allow her to do.
I do not know all the details, but from what I have heard from the PM of that place she really can’t do much of anything. Maybe they are taking it to an extreme to be safe… but again I don’t know all the details so maybe there is something I don’t know. I know that PM is making any employee who is sneezing or coughing wear a mask the entire day so they don’t get her sick.
I wouldn’t want that much attention drawn to me. But if there is something better that doesn’t cause immune suppression I would be willing to talk to him about it. I would even be OK with having to take days off work since corporate is sending weekly emails to me about how I need to use some of my PTO before it goes away. (I have until July – no idea why they are getting this way this early about it)
8. How often will you want me to get MRIs – this is the least important question…. Mostly for my own benefit so I can know when I can start on my piercings on my right ear.
9. Do you think I am going to end up unable to walk/work sometime in the near future?
Does this sound like an excessive amount of questions for a first visit? Is there something more important I am leaving out? I actually have probably about 5 more but I don’t want the poor guy thinking I am crazy from one visit. I just have a lot of questions that have gone unanswered over the past year.
2. How bad is drinking with this disease? (I have found some things saying it is helpful and some things saying it is not)
3. Do my two MRIs show any type of improvement? (Again I have read lesions can “heal” and go away)
4. What is your honest opinion of my long term prognosis? (I know this disease varies from person to person but I also know that even when they won’t say it Drs have an opinion on everything) – I know there are many factors that go into this as well, but just a basic opinion is something I need.
5. Could my insomnia be caused by a lesion? ( but then it goes back to that I have had insomnia since I can remember so I doubt I have had this for over 30 something years).
6. Related to question 5 how bad is using XYZ to get a good night’s sleep for this?
7. Is it worth me switching to a different medicine when I am stable on this one and a lot of the newer ones cause immune suppression? There is a Dr at one of the other locations that is having health issues where she has immune suppression and she is basically very limited in what they allow her to do.
I do not know all the details, but from what I have heard from the PM of that place she really can’t do much of anything. Maybe they are taking it to an extreme to be safe… but again I don’t know all the details so maybe there is something I don’t know. I know that PM is making any employee who is sneezing or coughing wear a mask the entire day so they don’t get her sick.
I wouldn’t want that much attention drawn to me. But if there is something better that doesn’t cause immune suppression I would be willing to talk to him about it. I would even be OK with having to take days off work since corporate is sending weekly emails to me about how I need to use some of my PTO before it goes away. (I have until July – no idea why they are getting this way this early about it)
8. How often will you want me to get MRIs – this is the least important question…. Mostly for my own benefit so I can know when I can start on my piercings on my right ear.
9. Do you think I am going to end up unable to walk/work sometime in the near future?
Does this sound like an excessive amount of questions for a first visit? Is there something more important I am leaving out? I actually have probably about 5 more but I don’t want the poor guy thinking I am crazy from one visit. I just have a lot of questions that have gone unanswered over the past year.
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