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    #16
    Interesting quesiton

    I am in a unique situation. I work at a very large hospital. I am not clinical, but have worked the same job for 13 years with a group of nurses (Clinical by default, lol). They were the ones, in 2008, to tell me I needed to go get my blurry eye checked out. I was at work when a resident called from the eye clinic to tell me my MRI came back looking like MS, which we never discussed. Once I got over the shock and bewilderment, I just accepted it and created a "new normal". I was blessed to not have to hide it because my coworkers understand my limitations. I was blessed to work at a hospital that had all types of specialists, so, I was able to see a neuro opthomologist right away. I call it my disease when I do have to explain it to others. I've never hidden it.

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      #17
      I tend to reserve "sick" and "disease" for temporary things like colds & the flu, even if the dictionary doesn't make that distinction.

      I think of my chronic conditions as "a messed up nervous system and lungs" (MS, severe COPD & lung cancer), and that's how I talk about them.
      1st sx 11/26/09; Copaxone from 12/1/11 to 7/13/18
      NOT ALL SX ARE MS!

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        #18
        Originally posted by MarkLavelle View Post
        I tend to reserve "sick" and "disease" for temporary things like colds & the flu, even if the dictionary doesn't make that distinction.

        I think of my chronic conditions as "a messed up nervous system and lungs" (MS, severe COPD & lung cancer), and that's how I talk about them.
        My perspective is similar. I consider MS to be a "chronic illness" and that's how I refer to it. I find that I seem to have a lot in common with people who have other chronic illnesses that are different than MS (Type I diabetes, Parkinson's, etc). Even though most of our symptoms are different, there are experiences, responses, and yes -- sometimes symptoms -- that overlap.

        "Sick" sounds to me more like an "acute illness" -- it comes on suddenly and, after a certain length of time or treatment, the symptoms go away and health returns to normal.

        I don't think that I have ever referred to my MS as being sick. I guess the word "condition" works too. But, I use "chronic illness".
        ~ Faith
        MSWorld Volunteer -- Moderator since JUN2012
        (now a Mimibug)

        Symptoms began in JAN02
        - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
        - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
        .

        - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
        - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

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          #19
          Originally posted by kittysmith View Post
          I am in a unique situation. I work at a very large hospital. I am not clinical, but have worked the same job for 13 years with a group of nurses (Clinical by default, lol). They were the ones, in 2008, to tell me I needed to go get my blurry eye checked out. I was at work when a resident called from the eye clinic to tell me my MRI came back looking like MS, which we never discussed. Once I got over the shock and bewilderment, I just accepted it and created a "new normal". I was blessed to not have to hide it because my coworkers understand my limitations. I was blessed to work at a hospital that had all types of specialists, so, I was able to see a neuro opthomologist right away. I call it my disease when I do have to explain it to others. I've never hidden it.
          This sounds like a nice work place. You are fortunate. And I love the nurses fussing at you to get it checked out.
          He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
          Anonymous

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            #20
            I considere myself sick with MS , a chronic disease which creates a condition that lead to a disorder. And then I got the flu on top of it all that turned into pneumonia because of my immune suppression drug But I would never tell any one that out side of here only you guys. Far as any one else goes it’s just a bad leg and my back went out and I’ve got a bit of a sniffle.
            It was one agains't 2.5million toughest one we ever fought.

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              #21
              For some reason the term disease is more depressing to me. Condition seems like something more constant than MS, at least RRMS. Sick is when I have something mild and acute. Illness makes me think of Victorian fainting couches. And disorder seems like it could someday be re-ordered.

              But most of the time, I think of it as a chronic illness. For which, yes, I'd like a comfy fainting couch.

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                #22
                Originally posted by trevvian View Post
                But most of the time, I think of it as a chronic illness. For which, yes, I'd like a comfy fainting couch.
                I like it and I'll take one also preferably with a buff youngish lad fanning and feeding me grapes.
                He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
                Anonymous

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                  #23
                  Originally posted by Jules A View Post
                  I like it and I'll take one also preferably with a buff youngish lad fanning and feeding me grapes.
                  I thought bon bons were couch treats?
                  PPMS for 26 years (dx 1998)
                  ~ Worrying will not take away tomorrow's troubles ~ But it will take away today's peace. ~

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                    #24
                    Originally posted by KoKo View Post
                    I thought bon bons were couch treats?
                    Lol, yes even better!
                    He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
                    Anonymous

                    Comment


                      #25
                      Originally posted by 502E79 View Post
                      Affliction.
                      Affliction! I love it!!
                      Tawanda
                      ___________________________________________
                      Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

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                        #26
                        Trevvian, Jules and Koko

                        You guys are hysterical! Right now I am laughing myself "sick"!
                        Tawanda
                        ___________________________________________
                        Diagnosed with Multiple Sclerosis 2004; First sign of trouble: 1994

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                          #27
                          Originally posted by Tawanda View Post
                          You guys are hysterical! Right now I am laughing myself "sick"!
                          Actually, I often crack jokes about it...it's easier than being serious.

                          The bad news is I have a disease. The good news, is it's all in my head.

                          My MS symptoms are like early aging...on steroids.

                          I have holes in my brain. Too bad it doesn't have the same calming result as a lobotomy.


                          I have a friend who comes up with some real zingers... that I can never remember.

                          Comment


                            #28
                            Originally posted by trevvian View Post
                            Actually, I often crack jokes about it...it's easier than being serious.

                            The bad news is I have a disease. The good news, is it's all in my head.

                            My MS symptoms are like early aging...on steroids.

                            I have holes in my brain. Too bad it doesn't have the same calming result as a lobotomy.


                            I have a friend who comes up with some real zingers... that I can never remember.
                            lol - these are "sick" jokes! Please call your friend and have him tell you again. Always good to laugh
                            1st sx '89 Dx '99 w/RRMS - SP since 2010
                            Administrator Message Boards/Moderator

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                              #29
                              I needed a Like button for lots of these! :-)
                              ~ Faith
                              MSWorld Volunteer -- Moderator since JUN2012
                              (now a Mimibug)

                              Symptoms began in JAN02
                              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08
                              .

                              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                              Comment


                                #30
                                Was going to stay off this... but since my thread is closed I am not going to anymore.


                                I consider myself diseased and "defective". I am angry that the universe even let someone like me be born.

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