How do people get past the Shame of having this? I can’t even say the words when I talked to my old neurologist (just called it the curse) and I cried for 30 minutes after setting up my appointment with the new dr since I couldn’t say rotting brain to him.
I’m never going to be one of those people who tells everyone and goes to walks or anything but I’d like to be able to at least talk to my dr without crying. Saying the words makes it real to me and I’m still holding on to my .1 % hope that this was a misdiagnosis and I can still have somewhat of a future. .
I’ve accepted what my 5-10 year plan will be if I truly am cursed and am already looking to cross things of my bucket list this Friday with my piercings, tattoos, and unique hair colors. (Was to nervous before but nothing can hurt me as much as this hell). I just need advice on how to get over the unbearable amount of shame I have. .
I’m not looking for advice on how to accept this and be happy because as far as I’m concerned my life started to end last September 18th and ended completely September 21. I also need to decide if I can forgive my mom for telling her church buddies about this to “pray” for me. She had absolutely no right to share this information with anyone.
I’m never going to be one of those people who tells everyone and goes to walks or anything but I’d like to be able to at least talk to my dr without crying. Saying the words makes it real to me and I’m still holding on to my .1 % hope that this was a misdiagnosis and I can still have somewhat of a future. .
I’ve accepted what my 5-10 year plan will be if I truly am cursed and am already looking to cross things of my bucket list this Friday with my piercings, tattoos, and unique hair colors. (Was to nervous before but nothing can hurt me as much as this hell). I just need advice on how to get over the unbearable amount of shame I have. .
I’m not looking for advice on how to accept this and be happy because as far as I’m concerned my life started to end last September 18th and ended completely September 21. I also need to decide if I can forgive my mom for telling her church buddies about this to “pray” for me. She had absolutely no right to share this information with anyone.
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