I’d love to hear about everyone’s experience with this disease and what your initial reaction was to the diagnosis?
When I was diagnosed I went completely blind in one eye. I got referred to a neuro-ophthalmologist who had me get an mri done. The day I went in for the results the doctor asked me if I had someone who came with me? I informed him my father was in the waiting area and he had the nurse bring him in. At this point I was expecting the worst. Like a malignant brain tumor in which I only had a certain amount of time to live or something.
When the doctor said I have MS and was explaining what it was I breathed a sigh of relief. I thought at least it wasn’t something bad. Then I look over at my poor father who looks as if all the color had been drained from his face. When the rest of my family found out they were very freaked out and constantly telling me if I needed anything to just let them know....that they are here for me with looks of pitty mixed with fear in their eyes.
I guess I just don’t understand this. MS isn’t a death sentence therefore it’s not a big deal to me. It could have been worse. Yes some of the symptoms suck and yes I could become immobile someday and that would suck, but I’ll adapt just as I always do. I understand this disease affects everyone differently and I’m in no way making light of it, but it’s not a death sentence and for that I’m grateful.
When I was diagnosed I went completely blind in one eye. I got referred to a neuro-ophthalmologist who had me get an mri done. The day I went in for the results the doctor asked me if I had someone who came with me? I informed him my father was in the waiting area and he had the nurse bring him in. At this point I was expecting the worst. Like a malignant brain tumor in which I only had a certain amount of time to live or something.
When the doctor said I have MS and was explaining what it was I breathed a sigh of relief. I thought at least it wasn’t something bad. Then I look over at my poor father who looks as if all the color had been drained from his face. When the rest of my family found out they were very freaked out and constantly telling me if I needed anything to just let them know....that they are here for me with looks of pitty mixed with fear in their eyes.
I guess I just don’t understand this. MS isn’t a death sentence therefore it’s not a big deal to me. It could have been worse. Yes some of the symptoms suck and yes I could become immobile someday and that would suck, but I’ll adapt just as I always do. I understand this disease affects everyone differently and I’m in no way making light of it, but it’s not a death sentence and for that I’m grateful.
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