Announcement

Collapse
No announcement yet.

MS specialist in KANSAS CITY MO

Collapse
X
Collapse
 
  • Page of 1
  • Filter
  • Time
  • Show
Clear All
new posts
Previous template Next
    #1

    MS specialist in KANSAS CITY MO

    Hello. I just got done seeing a new neuro locally and she will NOT work. I'm in touch with my gp about a referral to an MS specialist in KC. I just want to get to tbe bottom of this. Any recommendations? This neuro today was intense - rushed. I could not think straight at all under the pressure. It seemed like she was half-listening/watching. She had me walk A FEW steps. Give me about 20 steps and I'm really obviously struggling to walk ... but 4 steps I'm just getting started.
    That's not all but it doesn't matter. Thank you.

    Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
    Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
    EDSS of 5.5, sometimes 6.0
    Tags: None
    #2
    You can use the National MS Society's Partners in MS Care feature on their website to find an MS center or other neurologist. Go to http://www.nationalmssociety.org/Tre...ers-in-MS-Care, enter your zip code, click the boxes next to Centers for Comprehensive MS, Neurologic Care and Submit and you'll get a page listing MS centers and neurologists in your area who are experienced with MS. That will save you a lot of guesswork.

    Comment

      #3
      Who did you end up seeing? Was she in Springfield? I think Mamabug has a good one in KC. Maybe you can send her a shout.
      Marti




      The only cure for insomnia is to get more sleep.

      Comment

        #4
        Originally posted by marti View Post
        Who did you end up seeing? Was she in Springfield? I think Mamabug has a good one in KC. Maybe you can send her a shout.
        Hello again - I saw Zhai. I don't want to talk bad about her ... just share the facts. She seems to be strictly "by the book" with no room or time for personal info. We tried sharing what was going on but she kept cutting us off. She shot questions faster than a machine gun. I have a very hard time processing informarion and an even harder time trying to get out what's in my head. All of that is greatly magnified when I'm under pressure or rushed. She talks fast, and her accent made it even harder.
        She might be great for someone ... but not for me. I think communication is very important and I don't see it happening here.

        I'm either going to see Dr Boutwell in KC (she seems good???) or MOVE back to Omaha and see my aunt's neuro (she has MS and loves her neuro, Dr Rana Zabad). I'm just ready to get to the bottom of this.

        Thank you Marti for suggesting Mamabug - I'll try to get in touch with her. And thank you jreagan for the link - that's how I learned about Dr Boutwell.

        Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
        Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
        EDSS of 5.5, sometimes 6.0

        Comment

          #5
          Originally posted by jjs View Post
          Hello again - I saw Zhai. I don't want to talk bad about her ... just share the facts. She seems to be strictly "by the book" with no room or time for personal info. We tried sharing what was going on but she kept cutting us off. She shot questions faster than a machine gun. I have a very hard time processing informarion and an even harder time trying to get out what's in my head. All of that is greatly magnified when I'm under pressure or rushed. She talks fast, and her accent made it even harder.
          She might be great for someone ... but not for me. I think communication is very important and I don't see it happening here.

          I'm either going to see Dr Boutwell in KC (she seems good???) or MOVE back to Omaha and see my aunt's neuro (she has MS and loves her neuro, Dr Rana Zabad). I'm just ready to get to the bottom of this.

          Thank you Marti for suggesting Mamabug - I'll try to get in touch with her. And thank you jreagan for the link - that's how I learned about Dr Boutwell.



          I just kicked my neuro out of my life today!! Right now I'm loose and on my own. Trying to get switched to Dr. Quinn. Good luck to you. It's not always easy.
          Marti




          The only cure for insomnia is to get more sleep.

          Comment

            #6
            I go to Dr Sharon Lynch in Kansas city, KS at KU Med Center. She is an MS Specialist and I really like her.
            - She's much more knowledgeable than my previous neurologist in Wichita was.
            - she remembers my medical history -- I was amazed at how acquainted she was with my file on my first visit. And she had only a day to prepare herself because they scheduled me into a cancellation appt. She remembers what we talked about from one visit to the next.
            - she takes time to answer questions. She doesn't rush appointments. (The down side of that is that she often runs late.,)
            ~ Faith
            MSWorld Volunteer -- Moderator since JUN2012
            (now a Mimibug)

            Symptoms began in JAN02
            - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
            - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08            .
            - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
            - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

            Comment

              #7
              I got a referral from my primary care provider to get in. Her waiting list was six months or more, bit I got on sooner because I went on their cancellation list.

              It's a three hour drive, one way, so I schedule a Friday afternoon appointment. We drive up Friday morning and spend Friday night on a motel so we don't have to drive six hours in one day.
              ~ Faith
              MSWorld Volunteer -- Moderator since JUN2012
              (now a Mimibug)

              Symptoms began in JAN02
              - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
              - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08              .
              - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
              - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

              Comment

                #8
                Thank you! Is she on the Kansas side of KC, or the Missouri side? I have medicaid for MO and they said no out-of-state unless it's an emergency.
                She sounds like a great doctor. We're 3 hours away too. I don't drive (except limited in our small town), so I bring a pillow and earplugs - thankfully I have no problem sleeping in the vehicle.
                If she's in KS I'll just try Boutwell ... and pray all goes well either way.
                Thanks again.

                Originally posted by Mamabug View Post
                I go to Dr Sharon Lynch in Kansas city, KS at KU Med Center. She is an MS Specialist and I really like her.
                - She's much more knowledgeable than my previous neurologist in Wichita was.
                - she remembers my medical history -- I was amazed at how acquainted she was with my file on my first visit. And she had only a day to prepare herself because they scheduled me into a cancellation appt. She remembers what we talked about from one visit to the next.
                - she takes time to answer questions. She doesn't rush appointments. (The down side of that is that she often runs late.,)

                Not officially diagnosed due to non-MS-specific spots on MRIs, but the neurologists all agree it's MS.
                Frustrated. January 2019: finally saw an MS specialist worth seeing. Maybe we'll get to the bottom of this.
                EDSS of 5.5, sometimes 6.0

                Comment

                  #9
                  She's in Kansas, at KU Med Center.
                  ~ Faith
                  MSWorld Volunteer -- Moderator since JUN2012
                  (now a Mimibug)

                  Symptoms began in JAN02
                  - Dx with RRMS in OCT03, following 21 months of limbo, ruling out lots of other dx, and some "probable stroke" and "probable CNS" dx for awhile.
                  - In 2008, I was back in limbo briefly, then re-dx w/ MS: JUL08                  .
                  - Betaseron NOV03-AUG08; Copaxone20 SEPT08-APR15; Copaxone40 APR15-present
                  - Began receiving SSDI / LTD NOV08. Not employed. I volunteer in my church and community.

                  Comment

                  Previous template Next
                  Working...
                  X