I was diagnosed with PPMS a few months back. They can't prescribe any DMTs and such, but I have my third appt next week. Is there any value to the appts? If they can't do anything other than try to address symptoms, then isn't "us" notifying them of a significant change for evaluation enough?
I don't want to go to endless appts if they're just going to ask how I'm doing. They have an online app for patients where we can contact our doctor. I don't want to blow off appts if they are worth it, but don't want to keep going so they can make a car payment. It's an hour each way and an hour I don't want to waste.
I mean, the reality is I'll let them know if I need papers filled out for disability, or want to know if they have something for a new symptom. I don't need a prognosis in several years. I know what I'm dealing with today which is good enough.
I don't want to go to endless appts if they're just going to ask how I'm doing. They have an online app for patients where we can contact our doctor. I don't want to blow off appts if they are worth it, but don't want to keep going so they can make a car payment. It's an hour each way and an hour I don't want to waste.
I mean, the reality is I'll let them know if I need papers filled out for disability, or want to know if they have something for a new symptom. I don't need a prognosis in several years. I know what I'm dealing with today which is good enough.
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