[*]How long since your MS onset (not diagnosis, but onset)? -- 1989, onset, so 27 years? [*]Do you use a mobility device? Regularly? Occasionally? What do you use?
cane in house, occ. outside, walker occ. outside, scooter outside mostly...mostly don't go outside.
[*]Do you still have RRMS or has your dx been changed to SPMS?
down or upgraded to SPMS in the late 1990s, early 2000s? forget. different neuro now.
[*]Are you employed, or on SSDI? When did you go on SSDI? [/LIST]. stopped working in 96-98 -- tremor affected typing skills...bad reaction to iv cipro in 96 and meds to counter reaction made a moderate tremor a grand one, left side...and one job i had required physical labor, so it became dangerous. find not working xtremely depressing. but i'm old enough to retire by now anyhow. imagine most retirees who loved working feel depressed about that too. got SS Disability in 1998. Eleven years after onset.
Here are my answers:
cane in house, occ. outside, walker occ. outside, scooter outside mostly...mostly don't go outside.
[*]Do you still have RRMS or has your dx been changed to SPMS?
down or upgraded to SPMS in the late 1990s, early 2000s? forget. different neuro now.
[*]Are you employed, or on SSDI? When did you go on SSDI? [/LIST]. stopped working in 96-98 -- tremor affected typing skills...bad reaction to iv cipro in 96 and meds to counter reaction made a moderate tremor a grand one, left side...and one job i had required physical labor, so it became dangerous. find not working xtremely depressing. but i'm old enough to retire by now anyhow. imagine most retirees who loved working feel depressed about that too. got SS Disability in 1998. Eleven years after onset.
Here are my answers:
- January 2002, a little over 14 years
- Not usually; occasionally, when I'm in a flare
- RRMS
- Went on SSDI in 2008, 6 years after the onset of MS
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