Hi all,
So over the years I seem to go in and out of denial. The reason I feel this way is because I have not had any significant changes on my MRIs.
Yes I have lesions (in the brain), but they remain unchanged. Never any enhancing lesions, no black holes. No new lesions except one small one on my thoracic spine, that could only be detected by one MRI view.This could just be an artifact as it could only be detected in one plane.
I know that symptoms do not always match with lesion location. And that there can also be lesions that do not have corresponding symptoms. But, it is hard to believe that I have MS. My symptoms always seem mild compared to the stories I read in this forum.
I went off Copaxone and seeing my neurologist for two years because I decided I did not have it.
Until late 2015. Right leg pain,cramps, knee buckling, a fall down the stairs. Return of symptoms in my right arm, discomfort in the right torso. Disc disease or MS? Some pain in my face again, but manageable.
I have had some abnormal reflexes- but they can be explained by disc disease- including a herniated cervical disc that led me to surgery (laminectomy) for relief of pain and muscle spasms in my arm, in 2009.
I have never had optic neuritis, numbness, or any significant weakness. It is always pain and muscle aches, and weird sensations. Not exactly detectable in the office, by the neurologist- at least they never said so.
I have had depression and rarely anxiety. I have had considerable fatigue a few times. I was diagnosed with fibromyalgia 30yrs ago, however the symptoms are rarely present- unless I have sleep issues.
I feel like there needs to be a "smoking gun" that nails the diagnosis for me. I see the neuro on the 21st to go over the brain, cervical and thoracic MRIs I had in the last two weeks.
What if the lesions are from a long ago, mild, encephalitis ,or migraines? What if my pain can be explained by shingles type flairs that never have a rash? I have never been told that I have or had encephalitis or migraines.
So far the neuro office said the brain and cervical MRI was unchanged in a phone message. Now for the thoracic MRI. Then what I wonder.
Ho hum, we will see. Sometimes "a little knowledge is a dangerous thing". Like a med student that starts to think they have this or that disease- as they learn how to be a doctor. What if it is all in my head?
-Dawl
So over the years I seem to go in and out of denial. The reason I feel this way is because I have not had any significant changes on my MRIs.
Yes I have lesions (in the brain), but they remain unchanged. Never any enhancing lesions, no black holes. No new lesions except one small one on my thoracic spine, that could only be detected by one MRI view.This could just be an artifact as it could only be detected in one plane.
I know that symptoms do not always match with lesion location. And that there can also be lesions that do not have corresponding symptoms. But, it is hard to believe that I have MS. My symptoms always seem mild compared to the stories I read in this forum.
I went off Copaxone and seeing my neurologist for two years because I decided I did not have it.
Until late 2015. Right leg pain,cramps, knee buckling, a fall down the stairs. Return of symptoms in my right arm, discomfort in the right torso. Disc disease or MS? Some pain in my face again, but manageable.
I have had some abnormal reflexes- but they can be explained by disc disease- including a herniated cervical disc that led me to surgery (laminectomy) for relief of pain and muscle spasms in my arm, in 2009.
I have never had optic neuritis, numbness, or any significant weakness. It is always pain and muscle aches, and weird sensations. Not exactly detectable in the office, by the neurologist- at least they never said so.
I have had depression and rarely anxiety. I have had considerable fatigue a few times. I was diagnosed with fibromyalgia 30yrs ago, however the symptoms are rarely present- unless I have sleep issues.
I feel like there needs to be a "smoking gun" that nails the diagnosis for me. I see the neuro on the 21st to go over the brain, cervical and thoracic MRIs I had in the last two weeks.
What if the lesions are from a long ago, mild, encephalitis ,or migraines? What if my pain can be explained by shingles type flairs that never have a rash? I have never been told that I have or had encephalitis or migraines.
So far the neuro office said the brain and cervical MRI was unchanged in a phone message. Now for the thoracic MRI. Then what I wonder.
Ho hum, we will see. Sometimes "a little knowledge is a dangerous thing". Like a med student that starts to think they have this or that disease- as they learn how to be a doctor. What if it is all in my head?
-Dawl
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