I tend to pop onto the forum only when I have a specific question or concern. But I know a lot of folks who are fairly new to this journey browse this section, so thought I'd post a couple positive developments. (They are totally unrelated to each other.)
Unsolicited Accessibility
I flew to another state for an in-person job interview a while ago, after a number of phone interviews. When I checked into the hotel, I was booked for a fully accessible room with a roll-in shower. I don't need it, so I swapped rooms to leave that one open. Evidently this firm always does that for candidates, since they don't know what the needs may be.
I thought that was very, very cool to deliberately accommodate possible needs. (I didn't get the job, but that's ok.)
Physical Therapy
After a flare last winter, I started having pretty consistent gait issues. I shrugged it off because I can walk, I just limp a little. I finally got annoyed enough with it fall that I emailed my Neuro who referred me straight to a PT practice that specializes in MS. Amazing It was great to be able to interact with others all across the MS spectrum, and it was awesome to be taken seriously, even though all I had wrong was a wonky gait. Long story short, they did electric stim and specific range-of-motion exercises to retrain the brain vs. just working on the muscle weakness.
After about 4 weeks of this, something in my brain actually seemed to "click." It's like the new neural pathways we were trying to create just formed. No more foot drop. I even ran for the first time in years--in an anti-gravity treadmill. Pretty cool stuff
It's only my experience, and I am well aware that I am still in the mild stages of this disease. So I don't bring it up to make light of anyone else's experience or to be overly perky.
I just wanted to share a couple positives. Particularly the PT-I had no idea that MS PT specialists even existed, so maybe s/
omeone else will find that knowledge
Unsolicited Accessibility
I flew to another state for an in-person job interview a while ago, after a number of phone interviews. When I checked into the hotel, I was booked for a fully accessible room with a roll-in shower. I don't need it, so I swapped rooms to leave that one open. Evidently this firm always does that for candidates, since they don't know what the needs may be.
I thought that was very, very cool to deliberately accommodate possible needs. (I didn't get the job, but that's ok.)
Physical Therapy
After a flare last winter, I started having pretty consistent gait issues. I shrugged it off because I can walk, I just limp a little. I finally got annoyed enough with it fall that I emailed my Neuro who referred me straight to a PT practice that specializes in MS. Amazing It was great to be able to interact with others all across the MS spectrum, and it was awesome to be taken seriously, even though all I had wrong was a wonky gait. Long story short, they did electric stim and specific range-of-motion exercises to retrain the brain vs. just working on the muscle weakness.
After about 4 weeks of this, something in my brain actually seemed to "click." It's like the new neural pathways we were trying to create just formed. No more foot drop. I even ran for the first time in years--in an anti-gravity treadmill. Pretty cool stuff
It's only my experience, and I am well aware that I am still in the mild stages of this disease. So I don't bring it up to make light of anyone else's experience or to be overly perky.
I just wanted to share a couple positives. Particularly the PT-I had no idea that MS PT specialists even existed, so maybe s/omeone else will find that knowledge
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