What a hot mess. Since the beginning of July I have been having sever gastric upset causing a lot of bile vomiting, stomach pain triggering MS flares, particularly esophageal spasms, pain is intense.
Not knowing if this is TY rebound my Neuro told me to see a GI.
GI#1= endoscopy and colonoscopy testing both normal, prescribes antacid convinced I have acid reflux. I do not have acid reflux. Dr was extremely hostile when I told her that after no change on antacids after two weeks.
GI #2= diagnoses bile reflux prescribes carafate that helped for 3 weeks then abruptly stopped orders a manometry test, muscles were good in esophagus. Orders a video swallow and on the advice from my Neuro he orders a gallbladder ultrasound.
Video swallow the speech pathologist has obviously dealt with MS, told me everything I already know, take it day by day and it's only going to get worse. I will eventually end up with a feeding tube. I know and I'm good with this.
GI calls and tells me the video swallow was as expected and the ultrasound (which he forgot that he ordered) was fine this is all MS and my new normal. The following day I get my results of the ultrasound first line said "Gallbladder is full of gallstones"
I am livid, GI tells me he was more concerned about my swallowing issues than the gastric issues. I point out I've has swallowing issues for 3 yrs and the gastric issues are flaring my MS and this Dr has the nerve to tell me that's not how MS works. Excuse me? Everytime I mentioned the gallbladder and his colossal blunder he changed the subject.
I see a surgeon on Friday.
Am I being a bad patient? Insurance options are limited in this field if I switch to another GI it would have to be a colleague of either #1 or #2, can I be blackballed by a doctor? Is it asking too much of doctors to do their homework with patients with specialized diseases?
So tired of doctors and now Aubagio will be delayed this is resolved.
Peace,
Anna
Not knowing if this is TY rebound my Neuro told me to see a GI.
GI#1= endoscopy and colonoscopy testing both normal, prescribes antacid convinced I have acid reflux. I do not have acid reflux. Dr was extremely hostile when I told her that after no change on antacids after two weeks.
GI #2= diagnoses bile reflux prescribes carafate that helped for 3 weeks then abruptly stopped orders a manometry test, muscles were good in esophagus. Orders a video swallow and on the advice from my Neuro he orders a gallbladder ultrasound.
Video swallow the speech pathologist has obviously dealt with MS, told me everything I already know, take it day by day and it's only going to get worse. I will eventually end up with a feeding tube. I know and I'm good with this.
GI calls and tells me the video swallow was as expected and the ultrasound (which he forgot that he ordered) was fine this is all MS and my new normal. The following day I get my results of the ultrasound first line said "Gallbladder is full of gallstones"
I am livid, GI tells me he was more concerned about my swallowing issues than the gastric issues. I point out I've has swallowing issues for 3 yrs and the gastric issues are flaring my MS and this Dr has the nerve to tell me that's not how MS works. Excuse me? Everytime I mentioned the gallbladder and his colossal blunder he changed the subject.
I see a surgeon on Friday.
Am I being a bad patient? Insurance options are limited in this field if I switch to another GI it would have to be a colleague of either #1 or #2, can I be blackballed by a doctor? Is it asking too much of doctors to do their homework with patients with specialized diseases?
So tired of doctors and now Aubagio will be delayed this is resolved.
Peace,
Anna
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