My husband can't take care of me because he suffers from back pain, it does change me when I need it but he still gets sick sometimes.
I'm getting in home OT and PT and I think I'll do well with that but now I have a rotator cuff microtear so transferring to a wheelchair is pretty much out of the picture until that heals and I have no idea how long that will take. Does anyone know? I can't use my left arm or hand to transfer at all. So who knows when I'll get in a wheelchair again. Besides, I always needed his help to transfer anyways.
I have a wonderful CNA health aide coming twice a week to give me a bed bath but at $21 an hour, I can no longer afford this after this week. I have requested a financial assistance application from and NMSS but I don't know if I can get assistance with this expense. I really need somebody to stay with me all the time, I really need to leave my home and moving to assisted living. That expense is simply completely out of the question.
If I stay here in my beloved home with my beloved husband and furbabies, I will never see anybody again or even look outside so how can I not lose my mind? This is not living.
I wish I were a zombie so I could at least walk a little bit. Meanwhile my aging parents are nearing the end of their lives, my mother has stage four cancer and my father refuses to acknowledge his health problems and he's always been that way, he could barely walk at all and he's starting to fall a lot. They are estranged from my only sibling, so I am the one who tries to coordinate their care and be their advocate.
Does anyone here have an aide that is with them 24/7? And how on earth do you pay for it?
I am only 51. I am not eligible for SSDI or Medicaid. And I guess we're going to have to lose everything before I would qualify for any kind of help and my quality-of-life is already so low that if it goes any lower I won't survive.
I can see those golden stairs sometimes when I'm about to go to sleep *** who is up there waiting, with the halo. I pray I won't wake up. I have a very busy week this week with doctors appointments, our urologist to address my UTIs and a breast ultrasound followed immediately by a consultation with a breast doctor or whatever they call that. If they find anything, I will decline treatment because what on earth where I would I want to stay in this situation?
Unless I can find a way to receive the help I need and stay in my home, I have nothing to live for and everyone around me is suffering because of my health problems. I am a very strong person but this is a mountain i cannot climb. And I constantly wonder, what did I ever do that was so awful that I deserve this?
Sorry to be such a bummer, just ignore me if it's too much. Have a wonderful Monday.
I'm getting in home OT and PT and I think I'll do well with that but now I have a rotator cuff microtear so transferring to a wheelchair is pretty much out of the picture until that heals and I have no idea how long that will take. Does anyone know? I can't use my left arm or hand to transfer at all. So who knows when I'll get in a wheelchair again. Besides, I always needed his help to transfer anyways.
I have a wonderful CNA health aide coming twice a week to give me a bed bath but at $21 an hour, I can no longer afford this after this week. I have requested a financial assistance application from and NMSS but I don't know if I can get assistance with this expense. I really need somebody to stay with me all the time, I really need to leave my home and moving to assisted living. That expense is simply completely out of the question.
If I stay here in my beloved home with my beloved husband and furbabies, I will never see anybody again or even look outside so how can I not lose my mind? This is not living.
I wish I were a zombie so I could at least walk a little bit. Meanwhile my aging parents are nearing the end of their lives, my mother has stage four cancer and my father refuses to acknowledge his health problems and he's always been that way, he could barely walk at all and he's starting to fall a lot. They are estranged from my only sibling, so I am the one who tries to coordinate their care and be their advocate.
Does anyone here have an aide that is with them 24/7? And how on earth do you pay for it?
I am only 51. I am not eligible for SSDI or Medicaid. And I guess we're going to have to lose everything before I would qualify for any kind of help and my quality-of-life is already so low that if it goes any lower I won't survive.
I can see those golden stairs sometimes when I'm about to go to sleep *** who is up there waiting, with the halo. I pray I won't wake up. I have a very busy week this week with doctors appointments, our urologist to address my UTIs and a breast ultrasound followed immediately by a consultation with a breast doctor or whatever they call that. If they find anything, I will decline treatment because what on earth where I would I want to stay in this situation?
Unless I can find a way to receive the help I need and stay in my home, I have nothing to live for and everyone around me is suffering because of my health problems. I am a very strong person but this is a mountain i cannot climb. And I constantly wonder, what did I ever do that was so awful that I deserve this?
Sorry to be such a bummer, just ignore me if it's too much. Have a wonderful Monday.
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