There is this huge heat wave going on in Europe which unfortunately has made me bed ridden for days now. I can still get out of my bed and stuff but it is SO tiring. We have no airconditioning in the house, just a small fan that blows hot air onto my body but it's some heat relieve.
The frustration, are my parents. They just don't get it and they never will. My room is an absolute mess and I know that but I just don't have the energy to clean it all up. I've been trying to clean it half an hour a day but even that is too tiring. It's also so frustrating to clean a room when you have certain disabilities. I have to sit on the floor while cleaning the floor. I can't bend down to pick up things so I have to sit on a yoga ball. Using a wet towel to clean off tables and what not means my hands will cramp up, hurt and feel like 200 pounds. I mean there is just nothing fun about me doing chores around the house if it means I'll get confronted with this disease all the time.
Because I never help around the house and my mum does most of the cleaning around the house I decided to clean the kitchen this week. I was so tired after it but I was happy I could help a bit. With the heat wave I haven't been doing much, just staying in my room watching some films on my laptop.
My mother got mad at me for doing nothing around here, so I told her I have MS and I do my best but my best isn't good enough for her. It's either everything or nothing. So she goes "so? I have 2 hernia's in my back ya don't see me complaining about doing chores around the house". At that point a switch flipped and I turned into the Hulk I'm afraid. My father later confronted me about it saying "what's your problem"and I told him my mother is the problem. She's the one telling me I abuse my disease whenever I want so I don't have to do chores which is NOT the case! He goes "well she's saying the truth, you never do anything around here do you?" so I explain to him again that I have MS and that it's hard. He goes on this tangent that I can still help for 15 minutes around the house doing little chores etc.
Honestly am I crazy or what? Is it so wrong of me that I seriously sometimes do not care how messy the house is because I'm too busy dealing with the MS? What's wrong with them that they can't acknowledge my disease and be kind, instead of shouting every day that I don't do a darn thing in this house? If you're a parent and have a kid with MS or you're someone in this position or was please give me some insight because I can't take it anymore.
The frustration, are my parents. They just don't get it and they never will. My room is an absolute mess and I know that but I just don't have the energy to clean it all up. I've been trying to clean it half an hour a day but even that is too tiring. It's also so frustrating to clean a room when you have certain disabilities. I have to sit on the floor while cleaning the floor. I can't bend down to pick up things so I have to sit on a yoga ball. Using a wet towel to clean off tables and what not means my hands will cramp up, hurt and feel like 200 pounds. I mean there is just nothing fun about me doing chores around the house if it means I'll get confronted with this disease all the time.
Because I never help around the house and my mum does most of the cleaning around the house I decided to clean the kitchen this week. I was so tired after it but I was happy I could help a bit. With the heat wave I haven't been doing much, just staying in my room watching some films on my laptop.
My mother got mad at me for doing nothing around here, so I told her I have MS and I do my best but my best isn't good enough for her. It's either everything or nothing. So she goes "so? I have 2 hernia's in my back ya don't see me complaining about doing chores around the house". At that point a switch flipped and I turned into the Hulk I'm afraid. My father later confronted me about it saying "what's your problem"and I told him my mother is the problem. She's the one telling me I abuse my disease whenever I want so I don't have to do chores which is NOT the case! He goes "well she's saying the truth, you never do anything around here do you?" so I explain to him again that I have MS and that it's hard. He goes on this tangent that I can still help for 15 minutes around the house doing little chores etc.
Honestly am I crazy or what? Is it so wrong of me that I seriously sometimes do not care how messy the house is because I'm too busy dealing with the MS? What's wrong with them that they can't acknowledge my disease and be kind, instead of shouting every day that I don't do a darn thing in this house? If you're a parent and have a kid with MS or you're someone in this position or was please give me some insight because I can't take it anymore.
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