Hi-got word today from neurologist since I had so many relapses last year (4) including one now for 2015 that I am still recovering from, that he's going to add solumedrol infusion once a month with my Rebif therapy. The solumedrol therapy I cannot take forever though due to other health complications that could arise. I have taken Rebif for over 7 months and last MRI looked good-no changes.
If this does not keep the relapses more at bay, then I switch to Tysabri, but I tested positive for JC virus so he cannot keep me on that continuously either...off and on. Ugh!
The third option is Rituxilab (chemotherapy drug infusion) which of course scared me A LOT and I cried when I left the office. Don't know what to do anymore...I usually try to be positive and encouraging about this disease, but feeling at a loss now and not so positive about any aspect of this disease.
Doc said to me today, "we are trying to buy you more time trying the other therapies", which I gather he meant until something worse physically happens to me.
I need to sleep on this. Thanks for listening friends!!!
If this does not keep the relapses more at bay, then I switch to Tysabri, but I tested positive for JC virus so he cannot keep me on that continuously either...off and on. Ugh!
The third option is Rituxilab (chemotherapy drug infusion) which of course scared me A LOT and I cried when I left the office. Don't know what to do anymore...I usually try to be positive and encouraging about this disease, but feeling at a loss now and not so positive about any aspect of this disease.
Doc said to me today, "we are trying to buy you more time trying the other therapies", which I gather he meant until something worse physically happens to me.
I need to sleep on this. Thanks for listening friends!!!
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