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I knew the MS Center wasn't for me

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    I knew the MS Center wasn't for me

    So I went to the Rocky Mountain MS Center for a second opinion type workup. I'm not a fan of big "machines" like our MS Center, but I tried my best to go in there with an open mind.

    First of all, I use a cane extremely rarely, but I took mine along because I knew this building was huge and I woke up feeling a bit off balance that morning, so I took it as a precaution.

    I met with the doctor, who I will not name because I have NOTHING nice to say about the guy. Well, he had really pretty eyes but that was it. He was a complete and utter jerk, you know the type who makes dumb jokes and then loudly guffaws at himself? Yeah, you know the type. He kept talking over me when he asked me a question, and I've read his report and see everything that he missed from the verbal interview (like half my meds and allergies. Really?).

    When he was checking my reflexes he kept hitting my left knee (I don't know why, there was a response) until it really started to hurt. There was this horrible buzzing fiery pain that shot all the way up to the small of my back. I told him it was hurting, but he just snapped for me to hold still and relax and I ended up pulling away from him entirely. I had also asked him not to touch my face, but of course he did just to see if it felt the same on both sides, which started my TN acting up.

    By the time I left, a mildly 'don't feel great' day had turned into a 'go home and take two days off' day. I am really glad I had the foresight to bring my cane because I could barely make it halfway down the hall when I left him. Luckily the front desk person saw how weak my left leg was after he had pummeled it into severe weakness, and brought me a wheelchair and took me all the way to my car.

    Anyway, my labs are good, I'm JCV negative and I have my MRI there next week. Needless to say, I will never be following up with this guy. No wonder he had so many appointments available when I called. About the only thing I want from RMMSC in the future is to use their MRIs since they have 3T machines.

    #2
    I am SO sorry that you went through something that awful.
    My "hot shot specialist" 2nd opinion dr wasn't half that awful & I'll never go back either. (touch my face & trigger my TN & I'm not responsible for my attitude. You did better than I could have)
    You're in charge-you deserve to be listened to & treated with respect and dignity.
    "Hope for the best and plan for the worst. That way, all your surprises will be pleasant."
    Verin Mathwin, The Wheel of Time by Robert Jordan

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      #3
      My 2nd opinion doc was also a "hot-shot specialist" who had two interns with him. He was too occupied entertaining them to really address me. And the one intern looked scared. Didn't need that!

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        #4
        I agree that you should not have been treated that way.

        I find it best though, to put a doctor in perspective.

        He is human just like the rest of us, no better, no worse. They are doing a job. Some love their profession, others not so much. I have an ex-inlaw nephew that has been a PA for the past 7- 8 years. He has also been prescribing himself, and selling prescription drugs to others. It worries me the people who went to him for help, and probably received it, but also put him on a pedestal he didn't deserve to be on.

        Go to doctors but don't go expecting them to be above yourself. When they start doing things inappropriately, stop and tell them! I know it is difficult, but oftentimes needed.

        I went to my insulin resistance doctor yesterday, and he couldn't give me the time of day for a problem that was plaguing me. I won't go back. He can just do without my business from now on. I like the guy, too. So I'll just not see him until I turn full diabetic, if ever. I'll go to my family doc who listens.
        Brenda
        Adversity gives you two choices in life: either let it make you bitter, or let it make you better! I choose the latter.

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          #5
          don't blame you

          First of all I totally understand.

          But, do not let one apple spoil the whole bushel. I had the same experience at Cleveland Clinic. Thankfully, the first person I saw was beyond excellent. But, he went fully into research and does not see patients.

          The next one I saw was much to be desired. She attempted to do the close your eyes and stand with your feet together with her across the room. I refused to do it, because, I fall backwards. That made her mad. I also told her that I fail nursing students for check offs if they do that, because it is a safety factor, and she is a practicing neurologist.

          Thankfully, for the most part the next visit I got to see a Nurse Practitioner, the sad part was is that the Previous Neuro had to come in at the end and she opened her mouth and made me mad.

          I choose to go back. Only because they, for me, can not offer more then what my local neuro can offer. For my case I do not need the T3 MRI.

          Find a different neuro there at RMMSC, and go for it. Also, find the manager of the practice and let them know what is going on. It needs to stop.
          God Bless and have a good day, Mary

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            #6
            Luckily I have a doc I'm very happy with, so I don't need the MS center at all. Maybe someday when I can't work anymore and won't be able to afford to pay my doc out of pocket.

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              #7
              General neuro vs Specialist

              I went to 4 different docs so far.
              The first one kept rescheduling after the initial MRI (6 ovoid lesions)
              The second one said it didn't matter everyone with MS has the same outcome
              ER visit lumbar puncture no O bands
              Third Neuro says likely, ordered audio and visual evoked potentials, PT, treating symptoms
              4th was the "specialist" did an OCT test thinning of optic nerve both sides, said go to the pain clinic.

              end result I like the 3rd doc, I go for the second MRI in a few days to see if I have more lesions and then I don't know what happens if there are not any more or if there are more. I am on heavy duty pain meds and I don't know if that should be a way of life. So I would go with who makes you comfortable. Just my 2 cents

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                #8
                Football-mom,

                I am sorry that you had such a bad experience at the RMMSC. They are supposed to be the best....I waited 9 months to see Dr. Vollmer. I appreciated his insight and perspective to my MS, but I don't see him as my doc. I see Dr. Shaffer up in Greeley, CO. It is quite a drive for me from the south metro part of Denver, but I really like him, he has provided me good care and he has MS too! He gets it! You might want to check him out. His bio is on the NMSS website.

                Best to you over the holidays!

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                  #9
                  Yes, I met him at one of the drug company dinners and he's on my short list if I ever need a new doc.

                  Comment


                    #10
                    9 years ago, my regular neuro, who's not a MS specialist, sent me to St. Mike's Hospital, a world renowned MS Clinic, just to make sure he didn't miss anything. Thank GOD he didn't as I had the worst experience ever with this specialist.

                    I guess I wasn't "disabled enough" to warrant this appointment! After 2 hours of having my eyes examined he asked me, "What's all this blinking?"... My right eye was blind and still is 9 years later. As well, my left eye is "dim".

                    The straw that broke the camel's back came when he KICKED MY CANE and asked what it was for (balance, you knob). It took me a half hour GO train, plus a subway, plus a 20 minute walk to get there. I still use the cane all these years later.

                    I'm sooooo glad to not have to go back. I've seen his name numerous times attached to written articles, he even uses a 20++ years old pic of himself. I guess I wasn't worth an article! I should have known he was a jerk when he berated his assistant within hearing distance of the entire waiting room, SHE apologized to us for such treatment!

                    Unfortunately, we can't change docs here so I dread the day I have to go back. Hopefully he will be retired (or deceased) by then.
                    Jen
                    RRMS 2005, Copaxone since 2007
                    "I hope to be the person my dog thinks I am."

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                      #11
                      As a follow up to this post. I really don't like this MS Center. First of all, they had to request permission from the awful doctor for me to be able to switch to a new doc. As far as I am concerned that should be my sole decision since, in effect, if he said no then I would have been cut off from the place for refusing to see him in particular again.

                      Anyway, that whole debacle took forever and now I have an appointment to see one of the more applauded physicians there with real experience behind him. Reviews about him are mixed with some saying he's too big and too busy to see patients or spend real time with them, but others click with him immediately, so we shall see.

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